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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
186 questions
What's On Your Holiday Wish List That Could Improve Your Life With Hemophilia?
A MyHemophiliaTeam Member asked a question 💭
posted December 11, 2023
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A MyHemophiliaTeam Member

I'm with you on that ,sometimes,I get looked at like being abused or drug abuse and I dont

posted December 19, 2023
Hello I Am Trying To Find Out Exactly What Thrombocydapenia Is
A MyHemophiliaTeam Member asked a question 💭
posted November 26, 2023
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A MyHemophiliaTeam Member

Thrombocytopenia is a condition that occurs when the platelet count in your blood is too low. Platelets are tiny blood cells that are made in the bone marrow from larger cells. When you are injured… read more

posted November 28, 2023
What Aspects Of Hemophilia Are You Grateful For And Worried About Lately?
A MyHemophiliaTeam Member asked a question 💭
posted November 20, 2023
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A MyHemophiliaTeam Member

I'm grateful I survived the many times I came close to death since I was 5 yo in 1949. I don't worry about it unless a doctor insists I do some procedure I know would be risky...then I'm adamant about… read more

posted November 22, 2023
Why You Need To Think About What You Did Last Summer
A MyHemophiliaTeam Member asked a question 💭

What you doing for the day

posted November 18, 2023
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A MyHemophiliaTeam Member

Going on holiday

posted November 21, 2023
Are There Ways To Lessen Fatigue That Comes With Von Willebrand Disease?
A MyHemophiliaTeam Member asked a question 💭

I have von willebrand disease. A lot of days I feel very tired and like a bus hit me. I also have pain in my joints and bones when I feel fatigued. The only way I can explain it is feeling like I have the flu. Are there any ways or tips to lessen my fatigue so I don’t feel so ill?

posted November 8, 2023 (edited)
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A MyHemophiliaTeam Member

I feel the same way. I find that making sure I drink enough water and keep moving as much as possible even though I don’t want to

posted November 26, 2023
If Possible, Have Your Child Attend A Hemophilia Summer Camp To Meet Others With Our Condition, Learn Basic Facts And Build Community..
A MyHemophiliaTeam Member asked a question 💭

Nowadays in countries with advanced medical care, many hemophiliacs never learn enough about our condition--about self-care and prevention of injury. It is critical that youngsters learn to avoid joint problems that can linger a life-time and cause chronic pain, plus the reasons for and importance of treatment. Not every young man needs to play tackle football or climb mountains. Encourage reading and development of positive social skills, things we all need in life.

posted October 28, 2023
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The Benefits Of Medical Marijuana
A MyHemophiliaTeam Member asked a question 💭

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

posted October 23, 2023
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A MyHemophiliaTeam Member

Thanks !!

posted October 28, 2023
The Benefits Of Medical Marijuana
A MyHemophiliaTeam Member asked a question 💭

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

posted October 23, 2023
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How Do You Cope With Seasonal Changes And Hemophilia?
A MyHemophiliaTeam Member asked a question 💭
posted October 23, 2023
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A MyHemophiliaTeam Member

Damp, cold weather badly inflames my joint pain, a life-long phenomenon experienced living in Michigan, linked to nearly seven decades of joint bleeding. I take Meloxicam, an NSAID prescription… read more

posted October 23, 2023 (edited)
What Hemophilia Symptoms Do You Have That You Didn’t Expect?
A MyHemophiliaTeam Member asked a question 💭
posted September 22, 2023
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A MyHemophiliaTeam Member

Symptoms I didn't expect? I've seen most everything our bleeding disorders can throw at us from birth to death, including joint destruction and viral contamination of the blood supply with tragic… read more

posted September 26, 2023