What Is Your Story Of How You (or Your Child) Were First Diagnosed? | MyHemophiliaTeam

Connect with others who understand.

sign up Log in
Resources
About MyHemophiliaTeam
Powered By
Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
What Is Your Story Of How You (or Your Child) Were First Diagnosed?
A MyHemophiliaTeam Member asked a question 💭
posted August 27, 2017
•
View reactions
A MyHemophiliaTeam Member

genetic testing at birth.

posted November 7, 2017
A MyHemophiliaTeam Member

My diagnosis came as a result of: emergency surgery due to tonsillitis.
They said I had very big clots,but none would hold.
So after an extended stay at AGH .
My mother took me to a hematologist after a follow up visit with the EENT.
In which she told him, that it takes a long time for my blood to clot up after an injury where I bit my tongue produced a large Hematoma.

The Hematologist and diagnosed me
As a mild hemophiliac

posted August 27, 2017
A MyHemophiliaTeam Member

at birth circumcision

posted August 27, 2017
A MyHemophiliaTeam Member

I was diagnosed when I was just starting 9th grade (about 15 years old.) when I went to have surgery to have my Tonsils removed. They did bloodwork a few days before hand. And when I was all preped for the surgery (I.V. and everything was ready, they were just about to give me the medication to pass out.) when the doctor came in the room saying that he needed to do more bloodwork because something was wrong with the first test. when those results came back they found out i have type 1 VonWillebrands, and sent me to a specialist.

posted August 27, 2017
A MyHemophiliaTeam Member

Although I suffered instances of excessive bleeding as a child the diagnosis was not made until I was 47. Incredibly lucky as I am a Vietnam veteran. Had an angel on my shoulder.

posted August 27, 2017

Related content

View All
For Those With Children In College Or Heading To College, How Did You Handle Sending Medication With Your Child And Informing The College.
A MyHemophiliaTeam Member asked a question 💭
What Are Your Feelings Towards Circumcision?
A MyHemophiliaTeam Member asked a question 💭
If Possible, Have Your Child Attend A Hemophilia Summer Camp To Meet Others With Our Condition, Learn Basic Facts And Build Community..
A MyHemophiliaTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in