its not easy to have to get a permission slip from the doctor when you tell your dentist or surgeon that you have a bleeding disorder. I look at it as a level of affinity with the divine because Jesus said all those who seek the truth are his followers.

You can’t just go to any doctor. There are Hemophilia Clinics. You need a doctor that deals with bleeding disorders. There are patients that come from all over to be treated at the Hemophilia Treatment Center in Los Angeles.

It can be difficult learning to deal with this. You have to resign yourself that you are not always in control, and no manner of preparation can prevent everything, accepting that sometimes "it is what it is" takes a good deal of, for Jack of a better term, "soul searching", and the acceptance that sometimes there is not a good answer. You can surround yourself with great people, and still feel very much alone. As much as people/family/friends will try to empathise, it is a darkness you walk alone, and whether consciously or not, decide how you will emerge on the other side.

THe only thing that upsets me about my condition is the drs. Nobody wants to treat me once they google my condition so that makes me mad but how I e dealt w it is simple. I don’t see any drs unless it’s really bad. I enjoy life w my kids and loved ones and only the nosebleeds are very horrid for us. Pain too but ways to deal w it.

I was in the boat with no factor as a kid until I graduated high school. When I had a bleed it was excruciating pain. Mostly in my knees and ankles. They would be 2 to 3 times bigger than should be, so imagine the pain. My mother always told me "just think of the people that are worse than you, people with cancer or had to have amputation. There is always someone worse off than you!" I would ponder on it and realize she was right. I don't dwell on my pain and always think what my mother told me.