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Top 10 Search Results for "is illness linked to von willer brands"

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Is Anyone Making Use Of Affordable Hand Held Infra Red Vein Viewer Devices To Assist With Seeing Your Viens.
A MyHemophiliaTeam Member asked a question 💭

I have used large costly mobile vein viewer devices in hospital.
I have found other more affordable hand held devices on the web.
Please share any experiences you may have had with your recommendations.
If possible also supply manufactures name and model number of the device.
Thanks

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A MyHemophiliaTeam Member

Any feedback? My veins are mostly collapsed.

Mussel Spasms
A MyHemophiliaTeam Member asked a question 💭

Last night my son got a few mussel spasms .... is this a concern? Is this a symptom of a brain bleed that might have been missed? My son is sever Hemophilia Type A

A MyHemophiliaTeam Member

Get him to see doctor at Hemophilia Treatment Center.

Do Any Of You With VWD Experience Petechiae And Fatigue?
A MyHemophiliaTeam Member asked a question 💭

For the last couple of months, I've experienced periodic extreme fatigue and I get petechiae (small red dotted rash) on my legs and chest. Are these typical symptoms any of you have experienced with your Von Willebrand Disease? What do you do about it?

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A MyHemophiliaTeam Member

I am always tired and have petechiae in random places, not to many, they are on my chest and legs. Should I worry?

Von Willie Brands Disease And Pregnancy
A MyHemophiliaTeam Member asked a question 💭

Have any women on here gotten pregnant with vonwillie brands disease... I'm not pregnant that I know of and have a few questions

A MyHemophiliaTeam Member

Well, I've had a LOT of pregnancies...and kids...I did have one pregnancy where I continued to have periods and did not test +, even though I was CLEARLY pregnant (three months when I went to the… read more

Spontaneous Black And Blues
A MyHemophiliaTeam Member asked a question 💭

I have what appears to be blood vessels that break spontaneously in my fingers and feet. It burns for a while and then a black and blue mark appears. is this common in people with Von Willobrands Disorder?

A MyHemophiliaTeam Member

Sounds like joint bleeds. I have it in my hands and arms and knees. But that’s exactly what happens, the burning and bruising is common with vwd usually what feels like arthritis pain follows.

Has Anyone Encountered A Surgeon Who Is Not Concerned With The Deficiency
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Thank you for sharing...I decided that day that this team would not be cutting on me...we have moved the surgery to a much bigger metropolis....they are only doctors..and I agree they feel above us… read more

How Bad Is It To Have Von Willebrands And A Platlete Disorder While Delivering A Baby?
A MyHemophiliaTeam Member asked a question 💭

I have Vonwillebrands so does my daughter who is pregnant but she also has a platelet disorder on top of the Von Willebrand's when I was pregnant my doctor said the Von Willebrand's gets better when you're pregnant but when my sister had both her babies she also has a platelet disorder on top of the von Willebrand's she almost died from bleeding I was told von Willebrand's and platelet disorder during pregnancy makes it worse my daughter's Dr doesn't seem to be worried about it but I am and I'm… read more

A MyHemophiliaTeam Member

I have vwd with platelet and factor VIII ISSUES. I have two children and only had problems after the birth of second. I bled for a month afterwards until they gave me fVIII infusions. That seemed to… read more

Has Anyone Have Prolonged Menstrual Cycles Associated With Excessive Bleeding
A MyHemophiliaTeam Member asked a question 💭

Has anyone have prolonged menstrual cycles associated with excessive bleeding and been diagnosed with von willebrand disease

A MyHemophiliaTeam Member

My whole life I have had horrible cycles! They last anywhere from 12- 20 days at a time. And they were every 3 weeks when I was younger. Now I’m in menapause(53 yrs old) and I only do it every 3 mos… read more

I Am A 62 Year Old Senior Who Needs To Have 13 Teeth Removed....
A MyHemophiliaTeam Member asked a question 💭

I am looking for an oral surgeon familiar with Hemophilia in the Titusville/Orlando, Florida. I am a Hemophlia patient (Factor 11) def. and have a tendency to bleed alot.. My dentist said I would need a transfusion before, and one unit after the procedure. So we are talking about a two-three day hospital trip for me. So far, I have no recommendations for anyone close by. Not sure what to do, as the work needs to be done asap because of constant infections.

Any advise would be appreciated… read more

A MyHemophiliaTeam Member

You absolutely need to contact the closest Hemophilia treatment center. I would not ever do oral surgery without the their involvement. I have had 3 surgeries all went well. I have Von Willebrands.

If Possible, Have Your Child Attend A Hemophilia Summer Camp To Meet Others With Our Condition, Learn Basic Facts And Build Community..
A MyHemophiliaTeam Member asked a question 💭

Nowadays in countries with advanced medical care, many hemophiliacs never learn enough about our condition--about self-care and prevention of injury. It is critical that youngsters learn to avoid joint problems that can linger a life-time and cause chronic pain, plus the reasons for and importance of treatment. Not every young man needs to play tackle football or climb mountains. Encourage reading and development of positive social skills, things we all need in life.

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