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Top 10 Search Results for "Factor VIII"

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How Bad Is It To Have Von Willebrands And A Platlete Disorder While Delivering A Baby?
A MyHemophiliaTeam Member asked a question 💭

I have Vonwillebrands so does my daughter who is pregnant but she also has a platelet disorder on top of the Von Willebrand's when I was pregnant my doctor said the Von Willebrand's gets better when you're pregnant but when my sister had both her babies she also has a platelet disorder on top of the von Willebrand's she almost died from bleeding I was told von Willebrand's and platelet disorder during pregnancy makes it worse my daughter's Dr doesn't seem to be worried about it but I am and I'm… read more

A MyHemophiliaTeam Member

I have vwd with platelet and factor VIII ISSUES. I have two children and only had problems after the birth of second. I bled for a month afterwards until they gave me fVIII infusions. That seemed to… read more

Benign Prostate Solutions With Factor VIII Vacuity.
A MyHemophiliaTeam Member asked a question 💭

Need benign tumor reduction.

A MyHemophiliaTeam Member

Had Epilepsy when i was younger had a tumour removed... Ten years later had another growth and had 'gamma knife surgery'. That resolved the problem for me...

Blood Types?
A MyHemophiliaTeam Member asked a question 💭

I am curious, my husband has O negative blood and his friend also has negative blood. These are the only 2 hemophiliacs I know. I was wondering if there is a correlation with negative blood and hemophilia? Also, my husband has a MTHFR mutation, which makes his body less able to detox, among other things. I do not know about his friend’s status on this, but we found out through 23&me and genetic genie. Does anyone else know their status as far as blood type and/or MTHFR mutation, specifically 677… read more

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A MyHemophiliaTeam Member

Interesting question but I don't believe there is any connection between RH factor and hereditary bleeding disorders. Like you, I am O-neg. but that only means we are universal blood donors (like… read more

Have Any Women With Mild Hemophilia A (or "symptomatic Carrier") Had Issues With Bruising With Mammogram?
A MyHemophiliaTeam Member asked a question 💭

I am scheduled for diagnostic mammogram. I have factor VIII levels in the low 40% and tend to bruise easily. Worried about the mammogram causing significant bruising so am wondering about the experiences of others.

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A MyHemophiliaTeam Member

I’ve had a few and never had a problem

Joint Bleeds
A MyHemophiliaTeam Member asked a question 💭

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

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A MyHemophiliaTeam Member

I have VWD and have always been told it’s a Factor VIII deficiency.

Surgery For Hemophilia Carriers
A MyHemophiliaTeam Member asked a question 💭

Has anyone who is a known hemophilia carrier with 50% factor levels had surgery.
My sister is due to have a knee replacement. What was your experience and what did you have to do pre surgery and post op?
Please share your experiences. Thanks

A MyHemophiliaTeam Member

Your sister should coordinate her care with surgeon and Hemophilia Treatment Center closest to her. It may be wise to consider factor replacement therapy or at very leat Stimate.

Has Anyone Been Told They Have Microbleeding In The Joints?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I switched to an extended 1/2 life Factor VIII product for prophylaxis and that seemed to eliminate ankle microbleeds.

Are There Any Severe Hemophilia A Women Out There?
A MyHemophiliaTeam Member asked a question 💭

My six-year-old daughter has severe hemophilia A, which we all know is extremely rare. So I’m looking to connect with women who are in the same position. As my daughter gets older, she’s starting to ask more questions about her condition and I would love to be a bit more prepared to answer her questions, and share experience from those with first hand experience managing hemophilia as a woman.

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A MyHemophiliaTeam Member

My aunt was diagnosed in the 1950’s with moderate Factor VIII deficiency. She is 70 years old now. With the treatments that are currently available your daughter should do very well. You should get… read more

Being Given Advate After A Procedure And You Have Von Willebrand's Type 2b
A MyHemophiliaTeam Member asked a question 💭

My son, like myself, has von Willebrand's type 2b. He is having his wisdom teeth removed and is going to take Amicar and Vonvendi. Weird thing is advate is also on the list. Anyone else with vW been given this? It is usually given to hemophiliacs

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A MyHemophiliaTeam Member

I've been given DDAVP

Has Anyone Heard Or Been Told That You Cannot Take Any Omega Oil Supplements If A Vonwillebrands Patient ?
A MyHemophiliaTeam Member asked a question 💭

I have been told that taking omega oil supplements could be very dangerous as I have Vonwillebrands. Has anyone else heard or been told this?

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A MyHemophiliaTeam Member

I was told by my daughters’ Hematologist that they couldn’t have anything with fish oil because it could thin their blood. Their bleeding disorder isn’t Vonwillebrands, but I would assume this would… read more