Von Willebrand Type 1 and hemophilia | MyHemophiliaTeam

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Top 10 Search Results for "Von Willebrand Type 1"

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Has Anyone Have Prolonged Menstrual Cycles Associated With Excessive Bleeding
A MyHemophiliaTeam Member asked a question 💭

Has anyone have prolonged menstrual cycles associated with excessive bleeding and been diagnosed with von willebrand disease

A MyHemophiliaTeam Member

My whole life I have had horrible cycles! They last anywhere from 12- 20 days at a time. And they were every 3 weeks when I was younger. Now I’m in menapause(53 yrs old) and I only do it every 3 mos… read more

Do Any Of You With VWD Experience Petechiae And Fatigue?
A MyHemophiliaTeam Member asked a question 💭

For the last couple of months, I've experienced periodic extreme fatigue and I get petechiae (small red dotted rash) on my legs and chest. Are these typical symptoms any of you have experienced with your Von Willebrand Disease? What do you do about it?

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A MyHemophiliaTeam Member

I am always tired and have petechiae in random places, not to many, they are on my chest and legs. Should I worry?

My Daughter Is 12 And Has Type 1 Von Willebrands. Anyone Else Have Young Ones With That?
A MyHemophiliaTeam Member asked a question 💭

Anyone else have young kiddos with this?

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A MyHemophiliaTeam Member

My daughter has Type 1 we haven’t had any serious incidents thank God. I’m type 3 and it’s a whole different world. My niece nephew sister and mom all have type one and they are all relatively normal… read more

How Bad Is It To Have Von Willebrands And A Platlete Disorder While Delivering A Baby?
A MyHemophiliaTeam Member asked a question 💭

I have Vonwillebrands so does my daughter who is pregnant but she also has a platelet disorder on top of the Von Willebrand's when I was pregnant my doctor said the Von Willebrand's gets better when you're pregnant but when my sister had both her babies she also has a platelet disorder on top of the von Willebrand's she almost died from bleeding I was told von Willebrand's and platelet disorder during pregnancy makes it worse my daughter's Dr doesn't seem to be worried about it but I am and I'm… read more

A MyHemophiliaTeam Member

I have vwd with platelet and factor VIII ISSUES. I have two children and only had problems after the birth of second. I bled for a month afterwards until they gave me fVIII infusions. That seemed to… read more

I Am A 62 Year Old Senior Who Needs To Have 13 Teeth Removed....
A MyHemophiliaTeam Member asked a question 💭

I am looking for an oral surgeon familiar with Hemophilia in the Titusville/Orlando, Florida. I am a Hemophlia patient (Factor 11) def. and have a tendency to bleed alot.. My dentist said I would need a transfusion before, and one unit after the procedure. So we are talking about a two-three day hospital trip for me. So far, I have no recommendations for anyone close by. Not sure what to do, as the work needs to be done asap because of constant infections.

Any advise would be appreciated… read more

A MyHemophiliaTeam Member

You absolutely need to contact the closest Hemophilia treatment center. I would not ever do oral surgery without the their involvement. I have had 3 surgeries all went well. I have Von Willebrands.

Don't Need To Ask Questions. I'm A Nurse, And I'm Well Educated In Von Willebrand.
A MyHemophiliaTeam Member asked a question 💭
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A MyHemophiliaTeam Member

Pregnancy and miscarriages

I Have Von Willebrand
A MyHemophiliaTeam Member asked a question 💭

Does anyone have chronic pain I have it in neck back hips knees and ankles already have had 1 total knee and 1 total hip replacement

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A MyHemophiliaTeam Member

Yes. And they just forced me to find a pain management doctor, even tho I’ve been to two pain programs. The rest, ice, compression, elevation. I used light compression socks around the house like… read more

Being Given Advate After A Procedure And You Have Von Willebrand's Type 2b
A MyHemophiliaTeam Member asked a question 💭

My son, like myself, has von Willebrand's type 2b. He is having his wisdom teeth removed and is going to take Amicar and Vonvendi. Weird thing is advate is also on the list. Anyone else with vW been given this? It is usually given to hemophiliacs

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A MyHemophiliaTeam Member

I've been given DDAVP

Are There Ways To Lessen Fatigue That Comes With Von Willebrand Disease?
A MyHemophiliaTeam Member asked a question 💭

I have von willebrand disease. A lot of days I feel very tired and like a bus hit me. I also have pain in my joints and bones when I feel fatigued. The only way I can explain it is feeling like I have the flu. Are there any ways or tips to lessen my fatigue so I don’t feel so ill?

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A MyHemophiliaTeam Member

I feel the same way. I find that making sure I drink enough water and keep moving as much as possible even though I don’t want to

Top Hematologist In NYC
A MyHemophiliaTeam Member asked a question 💭

I have von Willebrand’s Disease type 2b. Since I had a partial hysterectomy my platelets have been extremely low (as low as 23000). I need a second opinion on why my platelets will not increase. Can anyone recommend a very very good hematology in NYC.

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A MyHemophiliaTeam Member

Check with the Hemophilia Treatment Centers at Mount Sinai or Cornell Medical Center