I am scheduled for diagnostic mammogram. I have factor VIII levels in the low 40% and tend to bruise easily. Worried about the mammogram causing significant bruising so am wondering about the experiences of others.

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

Can Wilabrands runs in my family with levels around 27% with the exception of my uncle who had less than 1%. No one in my family, including myself, who have levels normally at 27% have had a decrease like this. On occasion our levels have risen. So I am a little out of my element. What does this mean and what could have caused it? I haven't gotten in touch with his HTC Dr yet but spoke to the nurse. Is there anything I should be concerned with and bring up with her also? Thank you

We are considering attending this conference and would like to know if other families found it helpful/ educational. We are a new hemophilia family with a 2 month old (severe A). We are hoping to learn as much as we can before beginning factor treatment with our son.

I only take coumadin, i am hearing different treatments from reading others comments. I don't know that i have a lot of questions. I will as i go on, i just want to fit in. I have a hemotologist at the U of M Minnesota. My Dr. Is suppose to specialize in these types of blood disorders. But he has said to me these 3 together are rare. I also have Stills disease which is an autoimmune disease. It is also rare. I was a nurse and a Social Worker very busy and needed. Now i am homebound and no one in… read more

Vonwilabrands runs in my family. From sever to moderate. So bleeding is something we are used to but past several years my grandmother has been throwing clots as well. It looks like something that may occur in older age. Her hematologist just said that she is unique which I don't think is really an answer. Her clotting factor fluctuates as well from 27% to normal. Has anyone else had any experience with this? I have asked around and googled but no real answers. Trying to find out before it… read more

My VW is mild, so I have not always given it the credit it deserves in causing complications in my life. But I was diagnosed with idiopathic hypersomnia (non REM narcolepsy) several years ago. I found out a year and a half ago I was misdiagnosed and had iatrogenic hypersomnia caused by an antidepressant. I thought I was completely cured when I stopped taking that medication, and my improvement really is a miracle. But I have always been a little more fatigued than the average person. I always… read more