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Catch up on the latest updates, events, and voices of others living with hemophilia.
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Gene Therapy May Allow Hemophilia Patients to Go Without Meds

Gene Therapy May Allow Hemophilia Patients to Go Without Meds

By Maureen Salamon, HealthDay ReporterWEDNESDAY, Dec. 6, 2017 (HealthDay News) -- Gene therapy has helped 10 men with a form of the bleeding disorder hemophilia produce a critical blood clotting factor. This could eliminate the need for tedious...
Posted 10/26/2018
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Replace Fear-Based Thinking with Love-Based Thinking

Replace Fear-Based Thinking with Love-Based Thinking

"Replace fear-based thinking with love-based thinking. Every time you're making a choice, ask yourself if it's going to cultivate the experience of unity and love or the experience of separation and stress." – Deepak ChopraWe all experience fear....
Posted 09/09/2018
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Acceptance: Realigning Expectations and Extending Grace to Ourselves

Acceptance: Realigning Expectations and Extending Grace to Ourselves

"But that's not the way it's supposed to be!" is a common thing we say when our expectations fall short. It happens to all of us. Some members of MyHemophiliaTeam have found the practice of "allowing and letting be" in the midst of a trying to be...
Posted 08/30/2018
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What fruits and vegetables are in season?

What fruits and vegetables are in season?

One way to eat a healthier diet and include more fruits and vegetables is to eat what’s seasonally available. There’s a farmer’s market close to the office, so this past week's purchases were a cantaloupe, some basil, a couple of peaches. Time for...
Posted 08/26/2018
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The Importance of Trusting Yourself

The Importance of Trusting Yourself

Studies have shown that the more we take ownership of our condition, the more engaged we are in maintaining behaviors that help us live better.An important factor in having the confidence to take this ownership is self-trust."If something doesn't...
Posted 08/16/2018
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Hemophilia – An Overview

Hemophilia – An Overview

Hemophilia is a rare bleeding disorder usually caused by certain genes. Most often, hemophilia genes are passed down in families, although some hemophilia cases are the result of a random genetic mutation. Because of the way the gene for...
Posted 08/13/2018
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Hemophilia Types

Hemophilia Types

Types of hemophilia and other bleeding disorders are defined by which clotting factor (or factors) is too low or ineffective in their bodies. In some cases, hemophilia types are also defined by what causes the bleeding disorder. Knowing which type...
Posted 08/13/2018
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Treatments for Bleeding Disorders

Treatments for Bleeding Disorders

Without treatment, people with hemophilia and other bleeding disorders are at risk for excessive bleeding after injuries or surgery, life-threatening brain bleeds, and progressive damage to organs and joints. Treatment for bleeding disorders can...
Posted 08/13/2018
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What Causes Hemophilia?

What Causes Hemophilia?

The vast majority of hemophilia and other bleeding disorders are congenital – present at birth – and due to a defective gene. Even in milder cases where symptoms do not become apparent until later in childhood or even adulthood, most bleeding...
Posted 08/13/2018
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Hemophilia Symptoms

Hemophilia Symptoms

Bleeding is the best-known symptom of hemophilia, but it is not the only symptom. Pain, mobility issues, fatigue, and depression affect many people with bleeding disorders. Types of hemophilia symptomsSome symptoms of hemophilia are caused...
Posted 08/13/2018
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