Hemophilia

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I am wondering about fatigue with mild VWs.

My VW is mild, so I have not always given it the credit it deserves in causing complications in my life. But I was diagnosed with idiopathic hypersomnia (non REM narcolepsy) several years ago. I found out a year and a half ago I was misdiagnosed and had iatrogenic hypersomnia caused by an antidepressant. I thought I was completely cured when I stopped taking that medication, and my improvement really is a miracle. But I have always been a little more fatigued than the… read more

posted 16 days ago by A MyHemophiliaTeam User

How bad is it to have Von Willebrands and a platlete disorder while delivering a baby?

I have Vonwillebrands so does my daughter who is pregnant but she also has a platelet disorder on top of the Von Willebrand's when I was pregnant my doctor said the Von Willebrand's gets better when you're pregnant but when my sister had both her babies she also has a platelet disorder on top of the von Willebrand's she almost died from bleeding I was told von Willebrand's and platelet disorder during pregnancy makes it worse… read more

posted about 1 month ago by A MyHemophiliaTeam User
view all answers (2)

Thank you!

posted 24 days ago

My Nose Bleed lasted hours, what works best? VWD

I regularly get them on my left side and have had it cauterized three times. I use a Tampon to help for a clot and stop it but this was a five tampon event in my nose over just two hrs. I also just let it run in the sink for awhile out of frustration! Should I use the DDAVP NOSE spray in this case??

posted about 1 month ago by A MyHemophiliaTeam User

How do I add someone how has Hemophilia.

A friend, he's on facebook I would like to mention to him about this site. I don't think he knows about it and I would like to send him a link or a request some how, help please! HELP ME! PLEASE! lol

posted 2 months ago by A MyHemophiliaTeam User

Any women with a bleeding disorder have a hysterectomy?

If so, would love to hear your story and your healing time.

posted 3 months ago by A MyHemophiliaTeam User

I did, because of non-stop bleeding for over 6 months.....the surgery went fine no complications, but it was very painful recovery. Three months before… read more

posted 3 months ago
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