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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
173 questions
How Do Beverages With Caffeine Affect Your Hemophilia?
A MyHemophiliaTeam Member asked a question πŸ’­
Can You Get Blood Clotting Disorder From A Blood Transfusion ?
A MyHemophiliaTeam Member asked a question πŸ’­
Pregnancy With VWD. Has Anyone Had A Problem With Miscarriages.
A MyHemophiliaTeam Member asked a question πŸ’­
Don't Need To Ask Questions. I'm A Nurse, And I'm Well Educated In Von Willebrand.
A MyHemophiliaTeam Member asked a question πŸ’­
A MyHemophiliaTeam Member

Pregnancy and miscarriages

posted February 13
What Lessons From Your Hemophilia Experience Are You Applying In 2024?
A MyHemophiliaTeam Member asked a question πŸ’­
A MyHemophiliaTeam Member

1. If you are not happy with the results from your current treatment/therapy, look for something new. There are lots of treatment choices for Hemophilia A and B including many that are new within the… read more

posted January 23
How Does The Cold Affect Your Hemophilia?
A MyHemophiliaTeam Member asked a question πŸ’­
A MyHemophiliaTeam Member

Stiffen up my joints

posted January 17
What Hemophilia Symptoms Keep You Up At Night?
A MyHemophiliaTeam Member asked a question πŸ’­
A MyHemophiliaTeam Member

I'm a 50 year old with Hemaphilia A and I'm in the same situation and now it's getting worse with these drug shortages I'm having to struggle even to be able to get my pain meds filled

posted December 20, 2023
What's On Your Holiday Wish List That Could Improve Your Life With Hemophilia?
A MyHemophiliaTeam Member asked a question πŸ’­
A MyHemophiliaTeam Member

I'm with you on that ,sometimes,I get looked at like being abused or drug abuse and I dont

posted December 19, 2023
What Aspects Of Hemophilia Are You Grateful For And Worried About Lately?
A MyHemophiliaTeam Member asked a question πŸ’­
A MyHemophiliaTeam Member

I'm grateful I survived the many times I came close to death since I was 5 yo in 1949. I don't worry about it unless a doctor insists I do some procedure I know would be risky...then I'm adamant about… read more

posted November 22, 2023
If Possible, Have Your Child Attend A Hemophilia Summer Camp To Meet Others With Our Condition, Learn Basic Facts And Build Community..
A MyHemophiliaTeam Member asked a question πŸ’­

Nowadays in countries with advanced medical care, many hemophiliacs never learn enough about our condition--about self-care and prevention of injury. It is critical that youngsters learn to avoid joint problems that can linger a life-time and cause chronic pain, plus the reasons for and importance of treatment. Not every young man needs to play tackle football or climb mountains. Encourage reading and development of positive social skills, things we all need in life.

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