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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
187 questions

Are You Frustrated With Finding Effective Treatments For Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I understand the question, but what has not been effective?

posted 3 days ago

What's A Common Misconception About Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

People think because you have a bleeding disorder, you cannot live a normal life. In reality, you can do anything other people do if you keep your factor level up.

posted June 12

I Live In An Area Of 330,000 People. I Can’t Find A Surgeon To Remove A Cyst. What Do You Recommend?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Hey @A MyHemophiliaTeam Member! Have you found a surgeon yet? Finding a surgeon experienced with hemophilia can indeed be tough. Here are a few suggestions that might help:

- Hemophilia Treatment… read more

posted June 11

I Hope Everyone Has Had A Good Day!

A MyHemophiliaTeam Member asked a question 💭

What Tips Would You Share To Help With Seasonal Allergies?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Clarenese or Alergex

posted June 12

Do Any Of You Lovely People Suffer From Fatigue?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Yes, I’m severe fXI and my fatigue is a daily thing but it’s made worse from the cold. Best thing is to take more time for yourself and caffeine aha

posted April 24

Do You Suffer From Arthritis As A Result Of Bleeds? If So, What Treatment(s) Do You Use?

A MyHemophiliaTeam Member asked a question 💭

I have severe arthritis in both of my ankles. I use, Celebrex and an AFO brace.

A MyHemophiliaTeam Member

I have severe arthritis in my knee because of repeated bleeds and had a could have radioactive synovectomys which have just finished my knee off. On celecoxib, txa and 2000 daily benefix

posted April 24

Could You Share Any Dietary Changes And Tips That Have Helped With Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I ALWAYS take my iron. My bleeds are many times more worse if I am anemic.

posted April 23

Advice About Hemaphila C

A MyHemophiliaTeam Member asked a question 💭

How is Hemaphila C different from other hemophilia conditions

Do You Know Your Limit

A MyHemophiliaTeam Member asked a question 💭

Do you ever push yourself through a bleeding episode without infusing I do and it's actually not that bad once the bleeding has calmed down and gone away I hate needles is there any advise for this

A MyHemophiliaTeam Member

I would strongly discourage trying to push through a bleed and not infuse. Especially if it is in any major joint. You will definitely pay for it when you get older and you develop severe arthritis… read more

posted March 15
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