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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Factor 9 Replacement ?!
A MyHemophiliaTeam Member asked a question 💭

What are the replacement to the factor 9 if it isn't available?!We have been suffering from the lack of factor 9 in Jordan since October 2022!

posted April 11
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A MyHemophiliaTeam Member

Where do you live?

posted May 1
Benign Prostate Solutions With Factor VIII Vacuity.
A MyHemophiliaTeam Member asked a question 💭

Need benign tumor reduction.

posted April 8
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A MyHemophiliaTeam Member

Had Epilepsy when i was younger had a tumour removed... Ten years later had another growth and had 'gamma knife surgery'. That resolved the problem for me...

posted May 22
In Need Of Oral Surgeon In NYC
A MyHemophiliaTeam Member asked a question 💭

Hello. I’m living in NYC can not find an oral surgeon that will do work on a hemophiliac. Any help please.

posted February 3 (edited)
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A MyHemophiliaTeam Member

Check with your HTC (if you don't have one check the National Hemophilia Foundation website for choices in NYC) and check with the NYC Chapter of the National Hemophia Foundation.

posted March 12
What Can We Do By Mutated Plasminogen-Aktivator-Inhibitors 1 ? In My Group Is A Young Man With This
A MyHemophiliaTeam Member asked a question 💭
posted November 29, 2022
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Is Fish Oil Supplement Okay For Factor IX Deficient? I've Read That Bleeding Could Be A Side Effect.
A MyHemophiliaTeam Member asked a question 💭
posted November 19, 2022
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Super, I Have A Good Day, A Good Week
A MyHemophiliaTeam Member asked a question 💭
posted October 28, 2022
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I Am A 62 Year Old Senior Who Needs To Have 13 Teeth Removed....
A MyHemophiliaTeam Member asked a question 💭

I am looking for an oral surgeon familiar with Hemophilia in the Titusville/Orlando, Florida. I am a Hemophlia patient (Factor 11) def. and have a tendency to bleed alot.. My dentist said I would need a transfusion before, and one unit after the procedure. So we are talking about a two-three day hospital trip for me. So far, I have no recommendations for anyone close by. Not sure what to do, as the work needs to be done asap because of constant infections.

Any advise would be appreciated… read more

posted June 22, 2022
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A MyHemophiliaTeam Member

Once you get your meds I’m not sure what experience you’re looking for? My guy says I clot really good when medicated. I had a tooth pulled yesterday. I didn’t need the second transfusion, have no… read more

posted October 5, 2022
Can Any Of You Recommend A Great Hematologist In The San Diego Area?
A MyHemophiliaTeam Member asked a question 💭
posted March 28, 2022
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A MyHemophiliaTeam Member

Check with the Hemophilia Treatment Center at University of San Diego Medical Center

posted March 19
My Daughter Is 12 And Has Type 1 Von Willebrands. Anyone Else Have Young Ones With That?
A MyHemophiliaTeam Member asked a question 💭

Anyone else have young kiddos with this?

posted April 5, 2021
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A MyHemophiliaTeam Member

My daughter has Type 1 we haven’t had any serious incidents thank God. I’m type 3 and it’s a whole different world. My niece nephew sister and mom all have type one and they are all relatively normal… read more

posted December 21, 2022
Joint Bleeds
A MyHemophiliaTeam Member asked a question 💭

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

posted September 17, 2020
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A MyHemophiliaTeam Member

I have VWD and have always been told it’s a Factor VIII deficiency.

posted April 29
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