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What Are Your Top Tips For Dealing With Hemophilia In The Heat?
Any Updates News On Gene Therapy On Hemophilia A ( Factor 8 Deficiency)?
Certainly! Here are some updates on gene therapy for Hemophilia A (factor VIII deficiency) based on the knowledge base:
- Breakthrough Results: A recent gene therapy trial showed promising results… read more
Are You Frustrated With Finding Effective Treatments For Hemophilia?
I understand the question, but what has not been effective?
What's A Common Misconception About Hemophilia?
That only men can have Hemophilia, specifically Hemophilia A. My Mom was NOT a carrier but my Dad had severe Hemophila A. They say I acquired at birth via Lyons Hypothesis. Do you know how many… read more
I Live In An Area Of 330,000 People. I Can’t Find A Surgeon To Remove A Cyst. What Do You Recommend?
Hey @A MyHemophiliaTeam Member! Have you found a surgeon yet? Finding a surgeon experienced with hemophilia can indeed be tough. Here are a few suggestions that might help:
- Hemophilia Treatment… read more
I Hope Everyone Has Had A Good Day!
What Tips Would You Share To Help With Seasonal Allergies?
Clarenese or Alergex
Do Any Of You Lovely People Suffer From Fatigue?
Yes, I’m severe fXI and my fatigue is a daily thing but it’s made worse from the cold. Best thing is to take more time for yourself and caffeine aha
Do You Suffer From Arthritis As A Result Of Bleeds? If So, What Treatment(s) Do You Use?
I have severe arthritis in both of my ankles. I use, Celebrex and an AFO brace.
I have severe arthritis in my knee because of repeated bleeds and had a could have radioactive synovectomys which have just finished my knee off. On celecoxib, txa and 2000 daily benefix
Could You Share Any Dietary Changes And Tips That Have Helped With Hemophilia?
It will bring your hemoglobin up the quicker with making jello and drinking it before it gels and watch the benefits!
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