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I Am Interested In Finding Out If Anyone With VW Type 2b Ever Developed Low Platelet Counts Over Time?

I Am Interested In Finding Out If Anyone With VW Type 2b Ever Developed Low Platelet Counts Over Time?

Over approximately the past 10 years, my dad, who has von Willebrand's disease type 2b, has had platelet counts at about 25-35,000. The normal low for platelet counts is about 150,000. This is dangerous because the hematologists are afraid to do any procedures (knee surgery) because of this. The only medication that he can take so far is Humate-P and they are afraid to give him that since the platelets will raise but not at the same rate or safe rate as the vW factor.

He has had bone marrow… read more

posted March 17, 2016 (edited)

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