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Has Anyone Ever Been To The National Hemophilia Foundation Annual Meeting?
We are considering attending this conference and would like to know if other families found it helpful/ educational. We are a new hemophilia family with a 2 month old (severe A). We are hoping to learn as much as we can before beginning factor treatment with our son.
I attended my second meeting this year, as a presenter with tai chi. I am a severe Hemophiliac, type B. A great experience!
Thanks so much! It's great to hear from someone that's actually been to the conference. We have to decide on a factor, so I agree it would be great to hear from all of them in one place.
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