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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
What Bits Of "advice" Do You Wish People Would Stop Telling You?
A MyHemophiliaTeam Member asked a question 💭
posted October 8, 2016
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A MyHemophiliaTeam Member

only about 16,000 hemophiliacs in U.S.A. it is easy to understand why they don't. We just need to teach them. It is the teaching the doctors and nurses that bother me.

posted December 31, 2016
A MyHemophiliaTeam Member

That my son will grow out of it. Or he needs to not be such a rough and tumble kid.

I have always allowed my boys to do what they want. We just have to watch the bruises more.

posted October 14, 2016
A MyHemophiliaTeam Member

I wish people would not treat you as if you are contagious because you have a bleeding disorder. They act as if your going to spread it. That just goes to prove just how ignorant people can be.

posted October 8, 2016
A MyHemophiliaTeam Member

I've been told time and time again if I'd feed my children right they wouldn't have von willebrands disease. Also being told, well they don't look sick.

posted October 8, 2016
A MyHemophiliaTeam Member

I enjoy the advice people give me it makes me understand where they are coming from at that moment.

posted October 8, 2016

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