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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone In Here Suffer From Essential Thrombocythemia/thrombocytosis

A MyHemophiliaTeam Member asked a question šŸ’­
Buffalo, NY
April 9, 2017
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A MyHemophiliaTeam Member

I had TTP in 1992, my platelets were at 9000 and I almost didn't make it ,over 20 plasmapheresis exchanges, my port had to switched out because it malfunctioned ( thank god my husband noticed A change in my behavior concerning my plasma exchanges)and over a month in the hospital.A brain injury from lack of Oxygen and many many many mini strokes, last but no least damage to my nerves throughout my body so I am now in constant pain from head to toe and where the pain is changes from day to day.

February 4, 2018

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