Does Anyone In Here Suffer From Essential Thrombocythemia/thrombocytosis | MyHemophiliaTeam

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Does Anyone In Here Suffer From Essential Thrombocythemia/thrombocytosis
A MyHemophiliaTeam Member asked a question 💭
posted April 9, 2017
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A MyHemophiliaTeam Member

I had TTP in 1992, my platelets were at 9000 and I almost didn't make it ,over 20 plasmapheresis exchanges, my port had to switched out because it malfunctioned ( thank god my husband noticed A change in my behavior concerning my plasma exchanges)and over a month in the hospital.A brain injury from lack of Oxygen and many many many mini strokes, last but no least damage to my nerves throughout my body so I am now in constant pain from head to toe and where the pain is changes from day to day.

posted February 4, 2018

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