Does anyone in here suffer from essential thrombocythemia/thrombocytosis

Does anyone in here suffer from essential thrombocythemia/thrombocytosis

A MyHemophiliaTeam Member said:

I had TTP in 1992, my platelets were at 9000 and I almost didn't make it ,over 20 plasmapheresis exchanges, my port had to switched out because it malfunctioned ( thank god my husband noticed A change in my behavior concerning my plasma exchanges)and over a month in the hospital.A brain injury from lack of Oxygen and many many many mini strokes, last but no least damage to my nerves throughout my body so I am now in constant pain from head to toe and where the pain is changes from day to day.

posted almost 2 years ago
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