I have Factor V Lieben and on Percocet for pain. I also have nerve burns done every few months to my left leg where I’ve had 3 clot. I feel every single clot. I also had to have the IVC filter implant. Although Percocet helps for like 2 hrs nothing eliminates the pain completely. Would love to hear how other tolerant the pain.

It's an awful way to have to live but what else can you do?

That’s how I have to roll at work.

Alcohol affects my blood pressure, therefore causing symptoms to arise from having moya moya. So I'm kind of forced to live with the pain but I have developed a higher than normal pain tolerance. What would make most people cry in agony, I just brush it off.

So far alcohol is my only coping skill that works.