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Elbow Pain - Older Haemophiliacs
A MyHemophiliaTeam Member asked a question 💭

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

posted July 1, 2017
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A MyHemophiliaTeam Member

I have that and my physician put me on 10 mg. of oxicontin 2 times a day. Amitriptaline for the nerve down the elbow. My fingers were the same and my pinky was numb. I took it a week before the results started to relieve. The Amitriptaline is for depresson but works better for the nerves the doctor advised.

posted July 17, 2017
A MyHemophiliaTeam Member

Yes. I can no longer wear my wedding ring or Master Mason ring because of discomfort from years of elbow bleeding, and the "pins and needles" you described.

posted September 26
A MyHemophiliaTeam Member

Yes sir, I am 58. I talked to my physician about this. I had numb little fingers and have real bad elbows. He put me on the drug amatriptiline. I am sure I misspelled that. But it is a drug that was made for depression. Doc told me that it is a better nerve medicine than it is for depression. Within a week my fingers were getting feeling back. Don't know if it would help, thought I would pass it on.

posted June 29, 2018
A MyHemophiliaTeam Member

I am 45 and a severe type A Hemophiliac. My whole life I had nothing for treatments. By body actually kills any factor.. I'm very rare and that's where I know where your coming from. I have those same symptoms myself. My condition is so bad I've been on pain management for 22 years now. All my joints are swollen especially my knees. I actually know how some of the African kids actually feel to have no medicine. No treatments. Both my elbows cant straighten out and my wrists dont swivel or bend. My ankles are fused from scar tissue and for 18 years I walked on my tippy toes. I just adapted. I know it sucks to have those problems.. but rely on your inner strength cause it's a gift from God. All doctors ever told me is that I cant be worked on cause my blood is like water. I bleed 3 hours from a pimple... I face each day with pain and suffering and I've made it to the age I am now. Hold strong my hemo brother. When your joints get to bad pain medication may be your only option. You take care and God bless you bro.

posted May 13, 2018
A MyHemophiliaTeam Member

I’m 52 and have pain in ankles and elbows daily regardless of bleeding or not. I’m sorry you’re experiencing that. Might be synovium acting up or damage to ulnar nerve from repetitive bleeds. Elbows are a target joint for me so I cannot straighten both arms or touch my shoulders anymore. Might be time to go to a good Ortho Surgeon. Not too many work on elbows where I’m at so it’s a bit of a search. You might want to ask for an MRI to see how the soft tissue looks if this is becoming a daily problem. Good luck with it buddy, and again, I’m sorry you’re going through this. Take care of yourself.

posted May 13, 2018

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