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Elbow Pain - Older Haemophiliacs

Elbow Pain - Older Haemophiliacs

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

posted July 1, 2017
A MyHemophiliaTeam Member

I have that and my physician put me on 10 mg. of oxicontin 2 times a day. Amitriptaline for the nerve down the elbow. My fingers were the same and my pinky was numb. I took it a week before the results started to relieve. The Amitriptaline is for depresson but works better for the nerves the doctor advised.

posted July 17, 2017
A MyHemophiliaTeam Member

Tremeau Phamaceutical is currently enrolling patients for study of a new Cox2 inhibitor for pain. Google them to see if there is a study site near you.

posted October 8, 2022
A MyHemophiliaTeam Member

Yes. I am 62 with severe Hemophilia A and am currently experiencing chronic pain in both elbows, both ankles and both knees. Had total joint replacement of a knee in 1978 (which also led to HIV and Hepatitis C infections), hip replacement in 1980 and 2006, ankle fusion and radial head resection of an elbow during the 1980s. While somewhat helpful for a while, these have not been successful at curbing pain long-term. After decades using opiate medication for pain management, my state government made it illegal to prescribe opiates at the large daily dose I had used due to high opiate tolerance, which caused opiate withdrawal earlier this year. Medical marijuana (cannabis) has helped distract from the chronic pain to some extent, and I have been registered with the state since 2008 to legally grow and use cannabis but find it difficult to effectively function under the influence so refrain except at bedtime. We have also tried many other medications such as Motrin and similar anti-inflammatories (which sadly cause nosebleeds and spontaneous joint bleeding) and anti-depressants, as well as laser acupuncture, self-hypnosis and psychological counseling to assist with the depression joint pain triggers. I agree that the problem of severe chronic pain is terribly frustrating. Still, I am grateful my toddler grandson and other hemophiliacs these days have access to factor replacement treatment that was not available to me until I was a young teenager beginning in the late 1960s. Nevertheless, I have been able to pursue careers in both journalism and social work/rehabilitation counseling with licensure as a professional counselor and master's level social worker, have been married 34 years with two daughters, and two grandsons. Have served as board president of our state hemophilia chapter and HIV prevention community planning co-chair for the health department, as well as providing frequent talks on hemophilia and HIV/AIDS to medical school classes at the request of university faculty. Forgive me for my lengthy list of complaints--but the point is we can still achieve a great deal in our lives in spite of these obstacles if we work hard and try to maintain a positive attitude. Good luck with your situations, brothers and sisters!

posted September 24, 2018
A MyHemophiliaTeam Member

Yes sir, I am 58. I talked to my physician about this. I had numb little fingers and have real bad elbows. He put me on the drug amatriptiline. I am sure I misspelled that. But it is a drug that was made for depression. Doc told me that it is a better nerve medicine than it is for depression. Within a week my fingers were getting feeling back. Don't know if it would help, thought I would pass it on.

posted June 29, 2018
A MyHemophiliaTeam Member

I am 45 and a severe type A Hemophiliac. My whole life I had nothing for treatments. By body actually kills any factor.. I'm very rare and that's where I know where your coming from. I have those same symptoms myself. My condition is so bad I've been on pain management for 22 years now. All my joints are swollen especially my knees. I actually know how some of the African kids actually feel to have no medicine. No treatments. Both my elbows cant straighten out and my wrists dont swivel or bend. My ankles are fused from scar tissue and for 18 years I walked on my tippy toes. I just adapted. I know it sucks to have those problems.. but rely on your inner strength cause it's a gift from God. All doctors ever told me is that I cant be worked on cause my blood is like water. I bleed 3 hours from a pimple... I face each day with pain and suffering and I've made it to the age I am now. Hold strong my hemo brother. When your joints get to bad pain medication may be your only option. You take care and God bless you bro.

posted May 13, 2018

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