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I Have Von Willebrands. I Have Spontaneous Bleeds Under The Skin. I Also Have Joint Pain. Do VWD Patients Bleed Into Their Joints?

I Have Von Willebrands. I Have Spontaneous Bleeds Under The Skin. I Also Have Joint Pain. Do VWD Patients Bleed Into Their Joints?

A MyHemophiliaTeam Member said:

Anybody else have problems like this? I have an older Brent’s disease, and highly suspected Ehlers-Danlos syndrome?

posted over 3 years ago
A MyHemophiliaTeam Member said:

I have joint bleeding quite often...they cause joint deformities in my hands as well

posted over 3 years ago
A MyHemophiliaTeam Member said:

posted over 3 years ago
A MyHemophiliaTeam Member said:

Yes they do ! My daughter has the same the doctors seem to say live with it apparently hers isn’t serve enough, however she stays in pain and it is much worse doing her period

posted over 3 years ago
A MyHemophiliaTeam Member said:

I think so. I have TERRIBLE joint degeneration, for being my age (drs always tell me so). As an aside to you, though, about the bleeds under the skin--have you been tested for any vein irregularities? I have Ehlers-Danlos, Vascular Type, and I often "blow" veins under my skin very easily. They IMMEDIATELY turn black/purple and swell up, but then dissipate quite quickly...leaving just a bruise behind. This is a very dangerous diagnosis, so if your symptoms are similar, please get tested for it.

posted almost 4 years ago
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