Do Any Of You With Vwd Have Extreme Fatigue,joint Pain And Burning? | MyHemophiliaTeam

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Do Any Of You With Vwd Have Extreme Fatigue,joint Pain And Burning?
A MyHemophiliaTeam Member asked a question 💭

I can't seem to get enough sleep anymore. Somedays my joints hurt so bad I can hardly move and I am experiencing a terrible burning sensation around different joints when I move them. The most recent one is next to certain areas along my spine. My VWD is mild but this all worries me since it is happening more frequently.

posted February 11, 2020
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View reactions
A MyHemophiliaTeam Member

Are you being treated at a Hemophilia Treatment Center? You should see if you need additional treatment.

posted March 19
A MyHemophiliaTeam Member

Sounds like a joint bleed to me I have a target joint and that’s how it feels when it begins. Or to me it does.

posted May 3
A MyHemophiliaTeam Member

If it’s neuropathy try lotion and myrrh

posted October 5, 2022
A MyHemophiliaTeam Member

Me as well! I don’t know what is to expect from this VWD though. I have many other conditions like fibromyalgia and psoriatic arthritis

posted September 17, 2020
A MyHemophiliaTeam Member

Yes
I do. I also have vonwillebrands that is not too bad.

posted June 8, 2020

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