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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
187 questions

How Do Beverages With Caffeine Affect Your Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Not at all for me either.

posted April 23

Do Any Of You With VWD Experience Petechiae And Fatigue?

A MyHemophiliaTeam Member asked a question 💭

For the last couple of months, I've experienced periodic extreme fatigue and I get petechiae (small red dotted rash) on my legs and chest. Are these typical symptoms any of you have experienced with your Von Willebrand Disease? What do you do about it?

A MyHemophiliaTeam Member

I am always tired and have petechiae in random places, not to many, they are on my chest and legs. Should I worry?

posted September 22, 2023

Elbow Pain - Older Haemophiliacs

A MyHemophiliaTeam Member asked a question 💭

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

A MyHemophiliaTeam Member

I have pins and needles in my small finger as well as the next. Xrays shows that I have a nerve caught in the elbow joint. Got used to it after an few years. Now I have Carpal tunnel syndrome as well.

posted September 26, 2023

What Tips Would You Share To Help With Seasonal Allergies?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Clarenese or Alergex

posted June 12

Are There Ways To Lessen Fatigue That Comes With Von Willebrand Disease?

A MyHemophiliaTeam Member asked a question 💭

I have von willebrand disease. A lot of days I feel very tired and like a bus hit me. I also have pain in my joints and bones when I feel fatigued. The only way I can explain it is feeling like I have the flu. Are there any ways or tips to lessen my fatigue so I don’t feel so ill?

A MyHemophiliaTeam Member

I feel the same way. I find that making sure I drink enough water and keep moving as much as possible even though I don’t want to

posted November 26, 2023

What Hemophilia Symptoms Do You Have That You Didn’t Expect?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Symptoms I didn't expect? I've seen most everything our bleeding disorders can throw at us from birth to death, including joint destruction and viral contamination of the blood supply with tragic… read more

posted September 26, 2023

What’s Your Top Survival Tip For Managing Hemophilia In The Summer Heat?

A MyHemophiliaTeam Member asked a question 💭

Factor 9 Replacement ?!

A MyHemophiliaTeam Member asked a question 💭

What are the replacement to the factor 9 if it isn't available?!We have been suffering from the lack of factor 9 in Jordan since October 2022!

A MyHemophiliaTeam Member

You can reach out to “save one life” or a manufacturer to get factor

posted January 21 (edited)

Has Anyone Heard Or Been Told That You Cannot Take Any Omega Oil Supplements If A Vonwillebrands Patient ?

A MyHemophiliaTeam Member asked a question 💭

I have been told that taking omega oil supplements could be very dangerous as I have Vonwillebrands. Has anyone else heard or been told this?

A MyHemophiliaTeam Member

I was told by my daughters’ Hematologist that they couldn’t have anything with fish oil because it could thin their blood. Their bleeding disorder isn’t Vonwillebrands, but I would assume this would… read more

posted November 16, 2021

I’m Moving To Philadelphia, Pa And Am Looking For Recommendations For A Hemophilia Clinic To Register With. Can Anyone Make Recommendation?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Hi, David. I have been at Cardeza Foundation at Thomas Jefferson for decades. Chris Ramsey

posted October 8, 2022
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