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How Do Beverages With Caffeine Affect Your Hemophilia?
Not at all for me either.
Do Any Of You With VWD Experience Petechiae And Fatigue?
For the last couple of months, I've experienced periodic extreme fatigue and I get petechiae (small red dotted rash) on my legs and chest. Are these typical symptoms any of you have experienced with your Von Willebrand Disease? What do you do about it?
I am always tired and have petechiae in random places, not to many, they are on my chest and legs. Should I worry?
Elbow Pain - Older Haemophiliacs
Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?
I have pins and needles in my small finger as well as the next. Xrays shows that I have a nerve caught in the elbow joint. Got used to it after an few years. Now I have Carpal tunnel syndrome as well.
What Tips Would You Share To Help With Seasonal Allergies?
Clarenese or Alergex
Are There Ways To Lessen Fatigue That Comes With Von Willebrand Disease?
I have von willebrand disease. A lot of days I feel very tired and like a bus hit me. I also have pain in my joints and bones when I feel fatigued. The only way I can explain it is feeling like I have the flu. Are there any ways or tips to lessen my fatigue so I don’t feel so ill?
I feel the same way. I find that making sure I drink enough water and keep moving as much as possible even though I don’t want to
What Hemophilia Symptoms Do You Have That You Didn’t Expect?
Symptoms I didn't expect? I've seen most everything our bleeding disorders can throw at us from birth to death, including joint destruction and viral contamination of the blood supply with tragic… read more
What’s Your Top Survival Tip For Managing Hemophilia In The Summer Heat?
Factor 9 Replacement ?!
What are the replacement to the factor 9 if it isn't available?!We have been suffering from the lack of factor 9 in Jordan since October 2022!
You can reach out to “save one life” or a manufacturer to get factor
Has Anyone Heard Or Been Told That You Cannot Take Any Omega Oil Supplements If A Vonwillebrands Patient ?
I have been told that taking omega oil supplements could be very dangerous as I have Vonwillebrands. Has anyone else heard or been told this?
I was told by my daughters’ Hematologist that they couldn’t have anything with fish oil because it could thin their blood. Their bleeding disorder isn’t Vonwillebrands, but I would assume this would… read more
I’m Moving To Philadelphia, Pa And Am Looking For Recommendations For A Hemophilia Clinic To Register With. Can Anyone Make Recommendation?
Hi, David. I have been at Cardeza Foundation at Thomas Jefferson for decades. Chris Ramsey
