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182 questions
I Hope Everyone Has Had A Good Day!
A MyHemophiliaTeam Member asked a question 💭
What Tips Would You Share To Help With Seasonal Allergies?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

We live in South Texas. We take Claritin daily almost all year.

posted 1 day ago
Do Any Of You Lovely People Suffer From Fatigue?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Yes, I’m severe fXI and my fatigue is a daily thing but it’s made worse from the cold. Best thing is to take more time for yourself and caffeine aha

posted 1 day ago
Could You Share Any Dietary Changes And Tips That Have Helped With Hemophilia?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I ALWAYS take my iron. My bleeds are many times more worse if I am anemic.

posted 2 days ago
Don't Need To Ask Questions. I'm A Nurse, And I'm Well Educated In Von Willebrand.
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Pregnancy and miscarriages

posted February 13
Anyone In Here From Close To Madison, Indiana.
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I like hugs to

posted February 4
What Lessons From Your Hemophilia Experience Are You Applying In 2024?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

1. If you are not happy with the results from your current treatment/therapy, look for something new. There are lots of treatment choices for Hemophilia A and B including many that are new within the… read more

posted January 23
My Son Is 35 And Has Factor 9, Can Someone Help Find Factor For Him?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I'm also Factor 9 hemophilia B I live in central Canada I take Rebinyn.

posted January 20
What's On Your Holiday Wish List That Could Improve Your Life With Hemophilia?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I'm with you on that ,sometimes,I get looked at like being abused or drug abuse and I dont

posted December 19, 2023
What Aspects Of Hemophilia Are You Grateful For And Worried About Lately?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I'm grateful I survived the many times I came close to death since I was 5 yo in 1949. I don't worry about it unless a doctor insists I do some procedure I know would be risky...then I'm adamant about… read more

posted November 22, 2023
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