If Possible, Have Your Child Attend A Hemophilia Summer Camp To Meet Others With Our Condition, Learn Basic Facts And Build Community.. | MyHemophiliaTeam

Connect with others who understand.

sign up Log in
Resources
About MyHemophiliaTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
183 questions
If Possible, Have Your Child Attend A Hemophilia Summer Camp To Meet Others With Our Condition, Learn Basic Facts And Build Community..
A MyHemophiliaTeam Member asked a question 💭

Nowadays in countries with advanced medical care, many hemophiliacs never learn enough about our condition--about self-care and prevention of injury. It is critical that youngsters learn to avoid joint problems that can linger a life-time and cause chronic pain, plus the reasons for and importance of treatment. Not every young man needs to play tackle football or climb mountains. Encourage reading and development of positive social skills, things we all need in life.

The Benefits Of Medical Marijuana
A MyHemophiliaTeam Member asked a question 💭

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

A MyHemophiliaTeam Member

Thanks !!

posted October 28, 2023
The Benefits Of Medical Marijuana
A MyHemophiliaTeam Member asked a question 💭

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

What's One Natural Remedy That's Helped In Managing Your Hemophilia?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Of course ice is one of our long-standing tools, though I find it difficult to keep attached on such surfaces. Fifty years ago I was experimented on with porcine (pig) factor at University of Michigan… read more

posted October 28, 2023
Help Me What I Can Do For This
A MyHemophiliaTeam Member asked a question 💭
What Vitamins Gud To Take
A MyHemophiliaTeam Member asked a question 💭
What Vitamìns Gud For Me
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Besides occasionally eating I take a daily multi-vitamin/mineral supplement as others mentioned. Also supplements like Types 1, 2 & 3 collagen for bones, joints and cartilage, L-Carnitine amino acid… read more

posted October 28, 2023 (edited)
Super, I Have A Good Day, A Good Week
A MyHemophiliaTeam Member asked a question 💭
Have Any Women With Mild Hemophilia A (or "symptomatic Carrier") Had Issues With Bruising With Mammogram?
A MyHemophiliaTeam Member asked a question 💭

I am scheduled for diagnostic mammogram. I have factor VIII levels in the low 40% and tend to bruise easily. Worried about the mammogram causing significant bruising so am wondering about the experiences of others.

A MyHemophiliaTeam Member

I’ve had a few and never had a problem

posted April 2, 2022
What Could Be Wrong With Me?
A MyHemophiliaTeam Member asked a question 💭

I noticed some petechiae spots on my abdomen and legs in May. The ones on my abdomen started to spread and get lighter in color in the center. One doctor said that I had ringworm. I started using Lotramin. The spots continued to spread. I went to see a different doctor. He thought that it might be Lupus, but my ANA was negative. My aPTT was 34, which was said to be high. My Factor VIII Activity was 37%. My von Willebrand Factor (vWF) Ag was 81%, and my vWF Activity was 63%. The doctor ordered… read more

A MyHemophiliaTeam Member

Still no answers. The hematologist is sending me to a rheumatologist now.

posted August 8, 2019
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in