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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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What Can We Do By Mutated Plasminogen-Aktivator-Inhibitors 1 ? In My Group Is A Young Man With This
A MyHemophiliaTeam Member asked a question πŸ’­
posted November 29, 2022
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Is Fish Oil Supplement Okay For Factor IX Deficient? I've Read That Bleeding Could Be A Side Effect.
A MyHemophiliaTeam Member asked a question πŸ’­
posted November 19, 2022
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Super, I Have A Good Day, A Good Week
A MyHemophiliaTeam Member asked a question πŸ’­
posted October 28, 2022
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Trying To Find The Answer
A MyHemophiliaTeam Member asked a question πŸ’­

I am protein s deficiency and my levels are almost non existent
I am also protein c deficienc and it is almost unable to be detected.
I have been on blood thinners since September of 2011 I have had a p.e. and 2 small anyruisum. I have been trying to find out what this diagnosis means . I will take blood thinners for the rest of my life. I just can't get anyone to fully explain it to me

posted February 26, 2019
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Anyone Else Have A Qualitative Platelet Disorder And Factor 1 Hemophilia?
A MyHemophiliaTeam Member asked a question πŸ’­

My son was diagnosed at age 6 with a qualitative platelet disorder. His platelets are missing the mechanism that causes them to stack. I recently decided his medical records and noticed that when they were doing his blood work for the diagnosis his fibrinogen level was too low also but they never told me that. Could this mean that he is also a factor 1 hemophiliac... or am I over reacting?

posted October 15, 2018
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What Is Protein C Defecasy And Protein S Defecasy
A MyHemophiliaTeam Member asked a question πŸ’­
posted April 25, 2018
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Where Can I Get Help With Getting Factor 8 If You Do Not Have Insurance Or Medicaid
A MyHemophiliaTeam Member asked a question πŸ’­
posted June 24, 2017
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Anyone Have A Very Low Platelet Count With VW Type 2b
A MyHemophiliaTeam Member asked a question πŸ’­

I'm trying to find out if anyone with vW type 2b has constantly low platelet counts that doctors cannot explain.

posted April 5, 2017
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I Am Interested In Finding Out If Anyone With VW Type 2b Ever Developed Low Platelet Counts Over Time?
A MyHemophiliaTeam Member asked a question πŸ’­

Over approximately the past 10 years, my dad, who has von Willebrand's disease type 2b, has had platelet counts at about 25-35,000. The normal low for platelet counts is about 150,000. This is dangerous because the hematologists are afraid to do any procedures (knee surgery) because of this. The only medication that he can take so far is Humate-P and they are afraid to give him that since the platelets will raise but not at the same rate or safe rate as the vW factor.

He has had bone marrow… read more

posted March 17, 2016 (edited)
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Any Women With A Bleeding Disorder Have A Hysterectomy?
A MyHemophiliaTeam Member asked a question πŸ’­

If so, would love to hear your story and your healing time.

posted March 4, 2018
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