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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Trying To Find The Answer

Trying To Find The Answer

I am protein s deficiency and my levels are almost non existent
I am also protein c deficienc and it is almost unable to be detected.
I have been on blood thinners since September of 2011 I have had a p.e. and 2 small anyruisum. I have been trying to find out what this diagnosis means . I will take blood thinners for the rest of my life. I just can't get anyone to fully explain it to me

posted February 26, 2019

Anyone Else Have A Qualitative Platelet Disorder And Factor 1 Hemophilia?

Anyone Else Have A Qualitative Platelet Disorder And Factor 1 Hemophilia?

My son was diagnosed at age 6 with a qualitative platelet disorder. His platelets are missing the mechanism that causes them to stack. I recently decided his medical records and noticed that when they were doing his blood work for the diagnosis his fibrinogen level was too low also but they never told me that. Could this mean that he is also a factor 1 hemophiliac... or am I over reacting?

posted October 15, 2018

Anyone Have A Very Low Platelet Count With VW Type 2b

Anyone Have A Very Low Platelet Count With VW Type 2b

I'm trying to find out if anyone with vW type 2b has constantly low platelet counts that doctors cannot explain.

posted April 5, 2017

I Am Interested In Finding Out If Anyone With VW Type 2b Ever Developed Low Platelet Counts Over Time?

I Am Interested In Finding Out If Anyone With VW Type 2b Ever Developed Low Platelet Counts Over Time?

Over approximately the past 10 years, my dad, who has von Willebrand's disease type 2b, has had platelet counts at about 25-35,000. The normal low for platelet counts is about 150,000. This is dangerous because the hematologists are afraid to do any procedures (knee surgery) because of this. The only medication that he can take so far is Humate-P and they are afraid to give him that since the platelets will raise but not at the same rate or safe rate as the vW factor.

He has had bone marrow… read more

posted March 17, 2016 (edited)

Where Can I Get Help With Getting Factor 8 If You Do Not Have Insurance Or Medicaid

Where Can I Get Help With Getting Factor 8 If You Do Not Have Insurance Or Medicaid

My son 21 has no insurance and disability keeps denying him and so does Medicaid . we can't afford factor 8 for his bleeds . he has to drive an hour or more to another state just to get a factor 8 shot and that's an emergency room visit and Bill every time. Can we get help with getting factor 8 for him to have at home . please help me

posted June 24, 2017
A MyHemophiliaTeam Member

Call the manufacturer they can help.

posted July 4, 2017

Can Anyone Tell Me About The Drug Wilate Used To Treat VWD

Can Anyone Tell Me About The Drug Wilate Used To Treat VWD

posted November 5, 2019
A MyHemophiliaTeam Member

I take It. It’s factor 8 and has less things in it to react to is what I was told. I don’t feel as sick after taking it. Not sure what else you wanna know about it.

posted October 5
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