Connect with others who understand.

sign up log in
About MyHemophiliaTeam

Hemophilia

Questions + Answers

Don't see your question? ask question
Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
View:

Trying To Find The Answer

Trying To Find The Answer

I am protein s deficiency and my levels are almost non existent
I am also protein c deficienc and it is almost unable to be detected.
I have been on blood thinners since September of 2011 I have had a p.e. and 2 small anyruisum. I have been trying to find out what this diagnosis means . I will take blood thinners for the rest of my life. I just can't get anyone to fully explain it to me

Anyone Else Have A Qualitative Platelet Disorder And Factor 1 Hemophilia?

Anyone Else Have A Qualitative Platelet Disorder And Factor 1 Hemophilia?

My son was diagnosed at age 6 with a qualitative platelet disorder. His platelets are missing the mechanism that causes them to stack. I recently decided his medical records and noticed that when they were doing his blood work for the diagnosis his fibrinogen level was too low also but they never told me that. Could this mean that he is also a factor 1 hemophiliac... or am I over reacting?

Anyone Have A Very Low Platelet Count With VW Type 2b

Anyone Have A Very Low Platelet Count With VW Type 2b

I'm trying to find out if anyone with vW type 2b has constantly low platelet counts that doctors cannot explain.

NOWIQ And Octapharma

NOWIQ And Octapharma

got a packet from the non-profit chapter about this company and their product. was just wanting to see the reviews from people that i have connected to or a support group that i am in.

its derived from human based cells, from what i am gathering. just not sure on it as last i remember when they had tried something along that line the AIDS and Hep C outbreak occurred.

I Am Interested In Finding Out If Anyone With VW Type 2b Ever Developed Low Platelet Counts Over Time?

I Am Interested In Finding Out If Anyone With VW Type 2b Ever Developed Low Platelet Counts Over Time?

Over approximately the past 10 years, my dad, who has von Willebrand's disease type 2b, has had platelet counts at about 25-35,000. The normal low for platelet counts is about 150,000. This is dangerous because the hematologists are afraid to do any procedures (knee surgery) because of this. The only medication that he can take so far is Humate-P and they are afraid to give him that since the platelets will… read more

Does Anyone Else Have Side Effects From Amicar?

Does Anyone Else Have Side Effects From Amicar?

I have been on Amicar most of my life and dealt with the side effects, but they seem to be affecting me more lately. I've had nausea and vomiting, and i get really dizzy and ligt headed to the point of fainting. The worst though is along with that, I get super overheated. Does anyone else have these side effects? It's gotten so bad I have even considered trying to switch to Lysteda in hopes it won't have the same effects. Anyone have experiences with switching?

A MyHemophiliaTeam Member said:

I've had similar side effects (nausea, dizziness) with Amicar, which I've used after invasive dental procedures (extractions, other oral surgery). It… read more

posted over 1 year ago
Continue with Facebook
Sign up with your email
Already a Member? Log in