Hemophilia Questions and Answers | MyHemophiliaTeam

Connect with others who understand.

sign up Log in
Resources
About MyHemophiliaTeam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Don't see your question? Ask one here
Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
173 questions
In Need Of Oral Surgeon In NYC
A MyHemophiliaTeam Member asked a question 💭

Hello. I’m living in NYC can not find an oral surgeon that will do work on a hemophiliac. Any help please.

A MyHemophiliaTeam Member

I like Dr. Mahjoubi. She did my wisdom teeth op

posted July 17, 2023
What Can We Do By Mutated Plasminogen-Aktivator-Inhibitors 1 ? In My Group Is A Young Man With This
A MyHemophiliaTeam Member asked a question 💭
Is Fish Oil Supplement Okay For Factor IX Deficient? I've Read That Bleeding Could Be A Side Effect.
A MyHemophiliaTeam Member asked a question 💭
Super, I Have A Good Day, A Good Week
A MyHemophiliaTeam Member asked a question 💭
I Am A 62 Year Old Senior Who Needs To Have 13 Teeth Removed....
A MyHemophiliaTeam Member asked a question 💭

I am looking for an oral surgeon familiar with Hemophilia in the Titusville/Orlando, Florida. I am a Hemophlia patient (Factor 11) def. and have a tendency to bleed alot.. My dentist said I would need a transfusion before, and one unit after the procedure. So we are talking about a two-three day hospital trip for me. So far, I have no recommendations for anyone close by. Not sure what to do, as the work needs to be done asap because of constant infections.

Any advise would be appreciated… read more

A MyHemophiliaTeam Member

You absolutely need to contact the closest Hemophilia treatment center. I would not ever do oral surgery without the their involvement. I have had 3 surgeries all went well. I have Von Willebrands.

posted January 28
Can Any Of You Recommend A Great Hematologist In The San Diego Area?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Check with the Hemophilia Treatment Center at University of San Diego Medical Center

posted March 19, 2023
My Daughter Is 12 And Has Type 1 Von Willebrands. Anyone Else Have Young Ones With That?
A MyHemophiliaTeam Member asked a question 💭

Anyone else have young kiddos with this?

A MyHemophiliaTeam Member

My daughter has Type 1 we haven’t had any serious incidents thank God. I’m type 3 and it’s a whole different world. My niece nephew sister and mom all have type one and they are all relatively normal… read more

posted December 21, 2022
Joint Bleeds
A MyHemophiliaTeam Member asked a question 💭

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

A MyHemophiliaTeam Member

I have VWD and have always been told it’s a Factor VIII deficiency.

posted April 29, 2023
Does Anyone Else Have Non Itchy Red/purple Dots. Always There.
A MyHemophiliaTeam Member asked a question 💭

Hi, I have VWD, I have had red and purple dots for at least 15 yrs. Only on my abdomen and a few on chest. There are tons of them. Some very very tiny, a few look like cherry animolas spell?? A few raised. Most flat and never itch. Never go away completely. Sometimes they seem much worse or more prevalent than other times. Like if i take ibuprofen, which I was told not to but can't help it sometimes. My hematalogist always said its from the VWD. But that was 15 yrs ago. And i can't remember the… read more

A MyHemophiliaTeam Member

Keep your feet elevated.

posted October 5, 2022
Baby Clotting Each Time Blood Is Drawn
A MyHemophiliaTeam Member asked a question 💭

My son hasn’t been tested for Factor V Leiden or any other clotting disorder... well he has been...but it was after a blood transfusion. 🙄

When he was 2 months the hospital struggled to get his PICC line in.. (kept clotting)

Today he is 10 months and needed to have blood work done.. but they couldn’t get a lot because he kept clotting..

I guess my question is... is this a sign that he would most likely have a clotting disorder?

TIA

A MyHemophiliaTeam Member

Better to find a hematologist to ask that question

posted September 17, 2020
Continue with Facebook
Continue with Google
Your privacy is our priority. By continuing, you accept our Terms of use and Privacy policy.
Already a Member? Log in