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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
190 questions

Can You Help Me Understand My Blood Disorder

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I’m going to go get some food for the dogs

posted January 14

My Son Is 35 And Has Factor 9, Can Someone Help Find Factor For Him?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I'm also Factor 9 hemophilia B I live in central Canada I take Rebinyn.

posted January 20

What Hemophilia Symptoms Keep You Up At Night?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I'm a 50 year old with Hemaphilia A and I'm in the same situation and now it's getting worse with these drug shortages I'm having to struggle even to be able to get my pain meds filled

posted December 20, 2023

What's On Your Holiday Wish List That Could Improve Your Life With Hemophilia?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I'm with you on that ,sometimes,I get looked at like being abused or drug abuse and I dont

posted December 19, 2023

Hello I Am Trying To Find Out Exactly What Thrombocydapenia Is

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Thrombocytopenia is a condition that occurs when the platelet count in your blood is too low. Platelets are tiny blood cells that are made in the bone marrow from larger cells. When you are injured… read more

posted November 28, 2023

What Aspects Of Hemophilia Are You Grateful For And Worried About Lately?

A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

I'm grateful I survived the many times I came close to death since I was 5 yo in 1949. I don't worry about it unless a doctor insists I do some procedure I know would be risky...then I'm adamant about… read more

posted November 22, 2023

Why You Need To Think About What You Did Last Summer

A MyHemophiliaTeam Member asked a question 💭

What you doing for the day

A MyHemophiliaTeam Member

Going on holiday

posted November 21, 2023

Are There Ways To Lessen Fatigue That Comes With Von Willebrand Disease?

A MyHemophiliaTeam Member asked a question 💭

I have von willebrand disease. A lot of days I feel very tired and like a bus hit me. I also have pain in my joints and bones when I feel fatigued. The only way I can explain it is feeling like I have the flu. Are there any ways or tips to lessen my fatigue so I don’t feel so ill?

A MyHemophiliaTeam Member

I feel the same way. I find that making sure I drink enough water and keep moving as much as possible even though I don’t want to

posted November 26, 2023

If Possible, Have Your Child Attend A Hemophilia Summer Camp To Meet Others With Our Condition, Learn Basic Facts And Build Community..

A MyHemophiliaTeam Member asked a question 💭

Nowadays in countries with advanced medical care, many hemophiliacs never learn enough about our condition--about self-care and prevention of injury. It is critical that youngsters learn to avoid joint problems that can linger a life-time and cause chronic pain, plus the reasons for and importance of treatment. Not every young man needs to play tackle football or climb mountains. Encourage reading and development of positive social skills, things we all need in life.

The Benefits Of Medical Marijuana

A MyHemophiliaTeam Member asked a question 💭

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

A MyHemophiliaTeam Member

Thanks !!

posted October 28, 2023
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