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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
190 questions

The Benefits Of Medical Marijuana

A MyHemophiliaTeam Member asked a question đź’­

I've been reading a lot about the benefits of medical marijuana with people with hemophilia. Can anyone give me any insight

How Do You Cope With Seasonal Changes And Hemophilia?

A MyHemophiliaTeam Member asked a question đź’­
A MyHemophiliaTeam Member

Damp, cold weather badly inflames my joint pain, a life-long phenomenon experienced living in Michigan, linked to nearly seven decades of joint bleeding. I take Meloxicam, an NSAID prescription… read more

posted October 23, 2023 (edited)

What Hemophilia Symptoms Do You Have That You Didn’t Expect?

A MyHemophiliaTeam Member asked a question đź’­
A MyHemophiliaTeam Member

Symptoms I didn't expect? I've seen most everything our bleeding disorders can throw at us from birth to death, including joint destruction and viral contamination of the blood supply with tragic… read more

posted September 26, 2023

No Dr. In My Area Will Remove A Dust On My Neck. What Can I Do?

A MyHemophiliaTeam Member asked a question đź’­
A MyHemophiliaTeam Member

Gene, is the cyst causing pain or irritation? If not it might be OK to leave it for now, cosmetic issues aside. Your doc might also be unacquainted with factor replacement therapy and be afraid of… read more

posted October 28, 2023 (edited)

What's One Natural Remedy That's Helped In Managing Your Hemophilia?

A MyHemophiliaTeam Member asked a question đź’­
A MyHemophiliaTeam Member

Of course ice is one of our long-standing tools, though I find it difficult to keep attached on such surfaces. Fifty years ago I was experimented on with porcine (pig) factor at University of Michigan… read more

posted October 28, 2023

What’s Your Top Survival Tip For Managing Hemophilia In The Summer Heat?

A MyHemophiliaTeam Member asked a question đź’­

Help Me What I Can Do For This

A MyHemophiliaTeam Member asked a question đź’­

What Vitamins Gud To Take

A MyHemophiliaTeam Member asked a question đź’­

What Vitamìns Gud For Me

A MyHemophiliaTeam Member asked a question đź’­
A MyHemophiliaTeam Member

Besides occasionally eating I take a daily multi-vitamin/mineral supplement as others mentioned. Also supplements like Types 1, 2 & 3 collagen for bones, joints and cartilage, L-Carnitine amino acid… read more

posted October 28, 2023 (edited)

Factor 9 Replacement ?!

A MyHemophiliaTeam Member asked a question đź’­

What are the replacement to the factor 9 if it isn't available?!We have been suffering from the lack of factor 9 in Jordan since October 2022!

A MyHemophiliaTeam Member

You can reach out to “save one life” or a manufacturer to get factor

posted January 21 (edited)
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