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I only take coumadin, i am hearing different treatments from reading others comments. I don't know that i have a lot of questions. I will as i go on, i just want to fit in. I have a hemotologist at the U of M Minnesota. My Dr. Is suppose to specialize in these types of blood disorders. But he has said to me these 3 together are rare. I also have Stills disease which is an autoimmune disease. It is also rare. I was a nurse and a Social Worker very busy and needed. Now i am homebound and no one in… read more
Oh hun that's rough. To have all three definitely has to be hard. I have factor 8. Stay strong tho. How long have you known?
I also have three different disorders: 2, 5, and 13.
It's okay to be a zebra! I have both a bleeding disorder and a clotting disorder! You would think that they would "cancel each other out" but NO! they feed off of each other..*sigh*..keep the faith that you have a good doctor, and go for the quality of life, like I do! ((hugs))
I am not lying about having factor 5, 8 and 10. Dr. Redding told me i am not going for quantity of life. I am going for quality. I have 2 granddaughters that i live and breathe life from. I refuse to give up.
Yes i see Dr. Redding, he calls me his zebra. I am either bleeding out and need blood transfusions. Or i am to think and i have huge blood clots. I get blood clots in muscles and joints. My left wrist and both knees had blood clots in them. They are now replaced. Where do some of you go to Drs?
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