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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Are There Any Severe Hemophilia A Women Out There?
A MyHemophiliaTeam Member asked a question 💭

My six-year-old daughter has severe hemophilia A, which we all know is extremely rare. So I’m looking to connect with women who are in the same position. As my daughter gets older, she’s starting to ask more questions about her condition and I would love to be a bit more prepared to answer her questions, and share experience from those with first hand experience managing hemophilia as a woman.

posted September 18, 2018
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A MyHemophiliaTeam Member

My aunt was diagnosed in the 1950’s with moderate Factor VIII deficiency. She is 70 years old now. With the treatments that are currently available your daughter should do very well. You should get her on prophylactic factor replacement therapy or Hemlibra. Are you seeing a hematologist at a recognized Hemophilia Treatment Center.

posted October 8, 2022
A MyHemophiliaTeam Member

I have a niece who has mild hemophilia factor 8 she's in her late twenties and has 3 children, with one son who also has factor 8 deficiency.

posted September 24, 2018
A MyHemophiliaTeam Member

I have a 9 year old daughter who is mild hemophilia a.

posted September 23, 2018

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