My six-year-old daughter has severe hemophilia A, which we all know is extremely rare. So I’m looking to connect with women who are in the same position. As my daughter gets older, she’s starting to ask more questions about her condition and I would love to be a bit more prepared to answer her questions, and share experience from those with first hand experience managing hemophilia as a woman.
I have a niece who has mild hemophilia factor 8 she's in her late twenties and has 3 children, with one son who also has factor 8 deficiency.
I have a 9 year old daughter who is mild hemophilia a.
I'm considered Mild hemophilia A..I met a woman at Spring Fest in MI that is severe type A. She works for one of the vendors that were there. Starting to have women's focused retreats and confreneces, so hope your able to make some connections.