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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
I Have Von Willebrand
A MyHemophiliaTeam Member asked a question 💭

Does anyone have chronic pain I have it in neck back hips knees and ankles already have had 1 total knee and 1 total hip replacement

posted February 25, 2019
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A MyHemophiliaTeam Member

Yes. And they just forced me to find a pain management doctor, even tho I’ve been to two pain programs. The rest, ice, compression, elevation. I used light compression socks around the house like 8-12mmhm and gym socks at like 22mmhm. The lager number the tighter the compression. Get larger pro ice packs, I have 4 in the freezer at all times. Best to take pills on schedule and before pain ramps up. Chasing the pain is the worst. Pool therapy in a warm pool.

posted October 5, 2022
A MyHemophiliaTeam Member

I use a lot of pepperment oild and jajoba oild mixed for joint pain that helps

posted March 11, 2020
A MyHemophiliaTeam Member

Yes 😣 terrible for many years. I'm sorry you are hurting. 😣

posted April 29, 2019
A MyHemophiliaTeam Member

I have chronic pain in both replacement knees. I have 6 pins in my ankle, chronic pain there too.

posted March 16, 2019
A MyHemophiliaTeam Member

I have chronic pain in most of my joints. I’m a Severe A Hemophiliac and have had a knee, hip and shoulder replacement. My artificial knee(now 20 yrs old) has an infection in it and I will be having surgery to pull out joint and then put me on 6 weeks of IV Antibiotics. If all goes well, they will then try to put a new joint in. I’m pretty much in pain 24/7, sometimes it’s really bad, others it is tolerable. Since the infection started, the pain in really bad, sometimes a 10, but always a 7-8. What sucks is you can’t get pain meds to help until the surgery. It’s crazy! Hang in there! It will get better!

posted March 1, 2019

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