I have Von Willebrand

I have Von Willebrand

Does anyone have chronic pain I have it in neck back hips knees and ankles already have had 1 total knee and 1 total hip replacement

A MyHemophiliaTeam Member said:

Yes 😣 terrible for many years. I'm sorry you are hurting. 😣

posted 7 months ago
A MyHemophiliaTeam Member said:

I have chronic pain in both replacement knees. I have 6 pins in my ankle, chronic pain there too.

posted 8 months ago
A MyHemophiliaTeam Member said:

I have chronic pain in most of my joints. I’m a Severe A Hemophiliac and have had a knee, hip and shoulder replacement. My artificial knee(now 20 yrs old) has an infection in it and I will be having surgery to pull out joint and then put me on 6 weeks of IV Antibiotics. If all goes well, they will then try to put a new joint in. I’m pretty much in pain 24/7, sometimes it’s really bad, others it is tolerable. Since the infection started, the pain in really bad, sometimes a 10, but always a 7-8. What sucks is you can’t get pain meds to help until the surgery. It’s crazy! Hang in there! It will get better!

posted 9 months ago
A MyHemophiliaTeam Member said:

My daughter does but I have never been told that Von Will can lead to chronic pain and fatigue. She has so many other things going on and we were never told she needed to worry other then if she had surgery. That was 22 years ago.

posted 9 months ago
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