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I Have Von Willebrand
A MyHemophiliaTeam Member asked a question 💭

Does anyone have chronic pain I have it in neck back hips knees and ankles already have had 1 total knee and 1 total hip replacement

posted February 25, 2019
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A MyHemophiliaTeam Member

Yes. And they just forced me to find a pain management doctor, even tho I’ve been to two pain programs. The rest, ice, compression, elevation. I used light compression socks around the house like 8-12mmhm and gym socks at like 22mmhm. The lager number the tighter the compression. Get larger pro ice packs, I have 4 in the freezer at all times. Best to take pills on schedule and before pain ramps up. Chasing the pain is the worst. Pool therapy in a warm pool.

posted October 5, 2022
A MyHemophiliaTeam Member

I use a lot of pepperment oild and jajoba oild mixed for joint pain that helps

posted March 11, 2020
A MyHemophiliaTeam Member

Yes 😣 terrible for many years. I'm sorry you are hurting. 😣

posted April 29, 2019
A MyHemophiliaTeam Member

I have chronic pain in both replacement knees. I have 6 pins in my ankle, chronic pain there too.

posted March 16, 2019
A MyHemophiliaTeam Member

I have chronic pain in most of my joints. I’m a Severe A Hemophiliac and have had a knee, hip and shoulder replacement. My artificial knee(now 20 yrs old) has an infection in it and I will be having surgery to pull out joint and then put me on 6 weeks of IV Antibiotics. If all goes well, they will then try to put a new joint in. I’m pretty much in pain 24/7, sometimes it’s really bad, others it is tolerable. Since the infection started, the pain in really bad, sometimes a 10, but always a 7-8. What sucks is you can’t get pain meds to help until the surgery. It’s crazy! Hang in there! It will get better!

posted March 1, 2019

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