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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyHemophiliaTeam Member asked a question 💭
Griffin, GA

I bruise extremely easy with my May-Hegglin. Many times I have no clue what even caused the bruise. I like to wear skirts, dresses and shorts, but lately I dread wearing them because of my bruises and the reaction I get from others. I know I shouldn't care, but I don't want people to think I am abused either.

March 4, 2020
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A MyHemophiliaTeam Member

Be honest with people about your condition and how it causes bruising, often without you knowing the cause.

March 19, 2023
A MyHemophiliaTeam Member

I don't take any meds for my condition.

November 8, 2022
A MyHemophiliaTeam Member

I just tell them it’s ok. I’m used to it. Its part of the bleeding disorder. But I have my had bruises like that since my diagnosis. Do you take your meds?

October 5, 2022
A MyHemophiliaTeam Member

My youngest daughter has problems with bruising due to her Delta Granule SPD. For years I was accused of abusing her because of the bruising. Unfortunately, the only thing that has worked with her school/work/Girl Scouts was to educate everyone important that she would interact with.

March 15, 2020

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A MyHemophiliaTeam Member asked a question 💭

A MyHemophiliaTeam Member asked a question 💭
Carlisle, IN

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