Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I’m writing on behalf of my father. He’s 60, has hemophilia, and severe hemophilic arthropathy in his knee. He can no longer walk at all without crutches, and even then he’s in pain — but he still loves sport and keeps swimming and doing gentle cycling whenever he can. Joint injections have never helped him; only massage brings relief, and only for a moment.

Lately things have been getting harder. He’s started to feel pain in his ankles too, on top of everything else, and honestly the constant… read more

August 27
 · 
Be the first to react
A MyHemophiliaTeam Member

I'm 67 and developed hemophilic arthropathy in my left ankle around age 16. The right ankle followed two years later. My left knee was replaced in 1993 and is still going strong. For the ankles, it's just one of those things you have to learn to live with. I limit activity and keep some capsaicin cream on hand for when they get angry and I still need to be active. My ortho docs are willing to fuse my right ankle, but not the left to avoid stressing the knee replacement. One better ankle isn't worth the trouble to me. Sadly, there are no magic answers. You learn to manage.

September 1

Related Questions

View All
A MyHemophiliaTeam Member asked a question 💭
Durban, ZA

A MyHemophiliaTeam Member asked a question 💭
Ann Arbor, MI

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In