Below the surface, living with hemophilia can mean severe pain, mobility difficulty, and depression — and other days when you seem fine. There's so much more to hemophilia than meets the eye. A bleeding disorder comes with dozens of possible combinations of symptoms, many of which are unknown to outsiders.
Perhaps those who know you are aware that you have a bleeding disorder, but they may not understand that your condition goes beyond excessive or prolonged bleeding. MyHemophiliaTeam members say they also experience fatigue, depression, and headaches, as well as pain, numbness, or swelling in their limbs.