Hemophilia
Questions + Answers
How do I discourage my 17 yro. Severe Hemo. A son, not to buy a motorcycle?
How do I discourage my 17 yro. Severe Hemo. A son, not to buy a motorcycle?
.Hi, My 17 yro. Severe A son, is determined to buy a motorcycle. He has written and explained a 3 page report to me and his dad the reasons why he should be allowed to get a motorcycle. To me, this just sounds like the craziest idea in the world.--No exceptions!---A no brainer. But trying to convince my son is a totally different argument.
This would not happen right away, but probably within the next 6 to 8 mos.
I am searching for help from… read more
For Mild Hemophilia- females- How do you know when to treat, what symptoms do you experience that you relate to a bleed?
For Mild Hemophilia- females- How do you know when to treat, what symptoms do you experience that you relate to a bleed?
As a newly diagnosed female (former symptomatic carrier without treatment) I am trying to understand what others are experiencing and what advice they are getting. I want to have some background info to bring to my local hematologist and my HTC. Since my diagnosis I have heard some people say treat for pain even without swelling or heat, others say that there has to be visible signs of a… read more
When surgery is needed , how do you get oncologists/hematologists to work with surgeons to arrange surgery, infusions, and observation?
When surgery is needed , how do you get oncologists/hematologists to work with surgeons to arrange surgery, infusions, and observation?
I posted an in detail story about what’s happening, but in short. I need multiple surgeries and I am constantly being canceled by the oncologist for numerous reasons (not financial) for some ridiculous reasons such as dates, locations, etc. no referrals or rescheduling, no nothing, just cancels the surgery and surgeons eventually get annoyed and back out leaving me scavenging… read more
