Central venous access devices and hemophilia | MyHemophiliaTeam

Connect with others who understand.

sign up Log in
Resources
About MyHemophiliaTeam
Powered By
Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 9 Search Results for "Central venous access devices"

reset
Is Anyone Making Use Of Affordable Hand Held Infra Red Vein Viewer Devices To Assist With Seeing Your Viens.
A MyHemophiliaTeam Member asked a question đź’­

I have used large costly mobile vein viewer devices in hospital.
I have found other more affordable hand held devices on the web.
Please share any experiences you may have had with your recommendations.
If possible also supply manufactures name and model number of the device.
Thanks

•
View reactions
A MyHemophiliaTeam Member

Any feedback? My veins are mostly collapsed.

My Son Is 35 And Has Factor 9, Can Someone Help Find Factor For Him?
A MyHemophiliaTeam Member asked a question đź’­
•
View reactions
A MyHemophiliaTeam Member

I'm also Factor 9 hemophilia B I live in central Canada I take Rebinyn.

Factor 9 Replacement ?!
A MyHemophiliaTeam Member asked a question đź’­

What are the replacement to the factor 9 if it isn't available?!We have been suffering from the lack of factor 9 in Jordan since October 2022!

•
View reactions
A MyHemophiliaTeam Member

You can reach out to “save one life” or a manufacturer to get factor

When Surgery Is Needed , How Do You Get Oncologists/hematologists To Work With Surgeons To Arrange Surgery, Infusions, And Observation?
A MyHemophiliaTeam Member asked a question đź’­

I posted an in detail story about what’s happening, but in short. I need multiple surgeries and I am constantly being canceled by the oncologist for numerous reasons (not financial) for some ridiculous reasons such as dates, locations, etc. no referrals or rescheduling, no nothing, just cancels the surgery and surgeons eventually get annoyed and back out leaving me scavenging for other surgeons. Which most once they hear hemophilia refuse to do the surgery because apparently this is a common… read more

•
View reactions
A MyHemophiliaTeam Member

I use to have the same situation. Now I have them contact my hemotologist to set up a treatment plan together. Since I started this method. I haven't been rescheduled, denied, postponed, etc

Elbow Pain - Older Haemophiliacs
A MyHemophiliaTeam Member asked a question đź’­

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

•
View reactions
A MyHemophiliaTeam Member

I have pins and needles in my small finger as well as the next. Xrays shows that I have a nerve caught in the elbow joint. Got used to it after an few years. Now I have Carpal tunnel syndrome as well.

Has Anyone Have Prolonged Menstrual Cycles Associated With Excessive Bleeding
A MyHemophiliaTeam Member asked a question đź’­

Has anyone have prolonged menstrual cycles associated with excessive bleeding and been diagnosed with von willebrand disease

A MyHemophiliaTeam Member

My whole life I have had horrible cycles! They last anywhere from 12- 20 days at a time. And they were every 3 weeks when I was younger. Now I’m in menapause(53 yrs old) and I only do it every 3 mos… read more

I Have Factor IX Deficiency. I Am Trying To Get Dental Work Done But They Want To Charge Too Much. Are There Any Programs That Might Help?
A MyHemophiliaTeam Member asked a question đź’­
A MyHemophiliaTeam Member

Why are they charging so much. Is it just because of the dental work or because your factor 8 deficient?

Is It Safe To Have A Spinal? Or Would I Be Better Off Having General Anesthesia
A MyHemophiliaTeam Member asked a question đź’­

i need knee surgery, and maybe back surgery. I have a pace maker and can't have an MRI aslo, they want to inject dye into me back to see what is going on. I was told i could end up as a cripple if i bleed. Anyone know about this

A MyHemophiliaTeam Member

GENERAL anesthesia because with a spinal you'll wake up with a headache and pain you don't want that

Pregnancy, Labor And Delivery With Von Willebrands
A MyHemophiliaTeam Member asked a question đź’­

HI I am a 31 year old female with Von Willebrands. I was told I would die during labor and delievery, but notice you have 2 children. Did you have any complications during pregnqacy and childbirth?

•
View reactions
A MyHemophiliaTeam Member

Also as long as you know that you have Von Willebrands and are able to get proper treatment before and after delivery there is no reason why you shouldn't have a perfect pregnancy. Actually your body… read more