Top 10 Search Results for "Immune tolerance therapy (ITT)"
resetDoes Any One Have Factor Five Leiden And If So Does Your Body Respond To Pain Medication?
Does Anyone Else Have Non Itchy Red/purple Dots. Always There.
Does Anyone Else Have Non Itchy Red/purple Dots. Always There.
Hi, I have VWD, I have had red and purple dots for at least 15 yrs. Only on my abdomen and a few on chest. There are tons of them. Some very very tiny, a few look like cherry animolas spell?? A few raised. Most flat and never itch. Never go away completely. Sometimes they seem much worse or more prevalent than other times. Like if i take ibuprofen, which I was told not to but can't help it sometimes. My hematalogist always said its from the VWD. But that was 15 yrs ago. And i can't remember the… read more
I used to get them on my feet and legs, from hanging my feet off the edge of the bed when they were swollen. I’m pretty sure it’s called petechiae.
https://www.google.com/search?q=petechiae+medic...
Need Help Finding Others With The Same Very Rare Coag Profile
Need Help Finding Others With The Same Very Rare Coag Profile
Recently encountered a 6 year old kid that has the following coagulation profile...Severe F8 deficiency, very mild F9 deficiency and a low titer F8 inhibitor...does anyone else have the same profile???
My Nose Bleed Lasted Hours, What Works Best? VWD
My Nose Bleed Lasted Hours, What Works Best? VWD
I regularly get them on my left side and have had it cauterized three times. I use a Tampon to help for a clot and stop it but this was a five tampon event in my nose over just two hrs. I also just let it run in the sink for awhile out of frustration! Should I use the DDAVP NOSE spray in this case??
Intching, Pins And Needles On Face And Head
Intching, Pins And Needles On Face And Head
I’ve been having pins and needles and itching on my face and head from taking norco and methadone to manage my pain. Doesn’t anyone have a way to cope with it or any other information. I’ve tried other pain killers and can’t tolerate them as well as I do the opiates. I also smoke pot at night to deal with neuropathy and anxiety etc.
Certainly sounds very similar to my own, however, I have hemophilia factor VIII deficiency, severe...long winded way of saying that I have had problem which have resulted in my left knee being fused… read more
Physical Therapy
Physical Therapy
I do pilates 2-3 days a week. I also walk 3 days a week. I find this has helped keep the pain in my joints, and all around well-being more positive. My question is: Is this too much?
Does Anyone Else Have Side Effects From Amicar?
Does Anyone Else Have Side Effects From Amicar?
I have been on Amicar most of my life and dealt with the side effects, but they seem to be affecting me more lately. I've had nausea and vomiting, and i get really dizzy and ligt headed to the point of fainting. The worst though is along with that, I get super overheated. Does anyone else have these side effects? It's gotten so bad I have even considered trying to switch to Lysteda in hopes it won't have the same effects. Anyone have experiences with switching?
I Have Von Willebrand
I Have Von Willebrand
Does anyone have chronic pain I have it in neck back hips knees and ankles already have had 1 total knee and 1 total hip replacement
Joint Bleeds
Joint Bleeds
I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.
Elbow Pain - Older Haemophiliacs
Elbow Pain - Older Haemophiliacs
Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?
