Hemophilia

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Physical Therapy

Physical Therapy

I do pilates 2-3 days a week. I also walk 3 days a week. I find this has helped keep the pain in my joints, and all around well-being more positive. My question is: Is this too much?

A MyHemophiliaTeam Member said:

If you enjoy it, you are not in pain and your levels are good I don't see why it would be too much. I think the stretching walking and strength training… read more

posted almost 2 years ago

I am pregnant and have a Factor 7 deficiency. Any Factor 7 ladies have advice for a safe pregnancy and delivery?

I am pregnant and have a Factor 7 deficiency. Any Factor 7 ladies have advice for a safe pregnancy and delivery?

A MyHemophiliaTeam Member said:

You are very welcome! I did have a natural birth but the pain was rough, they wouldn’t give me anything for the contractions. Also, for post birth, make… read more

posted over 1 year ago

Is there anyone that would recommend a supplement insurance for copay and etc.?

Is there anyone that would recommend a supplement insurance for copay and etc.?

Looking for help with copay and supplement insurance similar to Aflac or etc.? Anyone have any suggestions out there? Thanks

A MyHemophiliaTeam Member said:

My State has a hemophilia program sign up every year.

posted over 1 year ago

Elbow pain - older Haemophiliacs

Elbow pain - older Haemophiliacs

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

A MyHemophiliaTeam Member said:

Yes. I am 62 with severe Hemophilia A and am currently experiencing chronic pain in both elbows, both ankles and both knees. Had total joint replacement… read more

posted about 1 year ago

Fusing knee with out surgery need info

Fusing knee with out surgery need info

I'm 39 hemo sever 8 with inhibitor no one wants to do knee replacement bone on bone. Has anyone done a bone fusin with out surgery letting the bones grow together basically i would wear a cast for 12 weeks and then that be it. Has anyone done that or know anyone that has

A MyHemophiliaTeam Member said:

I don't have an inhibitor but I had a total knee replacement done on both knees. A revision on the first one I had done. Very painful but so is bone on… read more

posted over 2 years ago
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