Connect with others who understand.

sign up log in
About MyHemophiliaTeam
Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Stimate"

reset

Whats The Best Healthcare Coverage Plan For Hemophiliacs If You Are Not Employed?

Whats The Best Healthcare Coverage Plan For Hemophiliacs If You Are Not Employed?

My current situation is that I am 28 years old and am about to start medical school in a state outside my own (I am a Minnesota resident and will be going to Virginia for school). Since I am over 26, I can not enroll under my parents and I also will not be working and the school does not provide insurance. This leaves me with finding private healthcare coverage. Has anyone else dealt with a situation similar to this? I am afraid of… read more

A MyHemophiliaTeam Member said:

Also...if you are from MN, I assume you have contact with the Center for Bleeding and Clotting disorders at the University of Minnesota

posted about 2 months ago

Where Can I Get Help With Getting Factor 8 If You Do Not Have Insurance Or Medicaid

Where Can I Get Help With Getting Factor 8 If You Do Not Have Insurance Or Medicaid

My son 21 has no insurance and disability keeps denying him and so does Medicaid . we can't afford factor 8 for his bleeds . he has to drive an hour or more to another state just to get a factor 8 shot and that's an emergency room visit and Bill every time. Can we get help with getting factor 8 for him to have at home . please help me

A MyHemophiliaTeam Member said:

Call the manufacturer they can help.

posted about 3 years ago

Joint Bleeds

Joint Bleeds

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

A MyHemophiliaTeam Member said:

I have two kids with the disease as well as myself. It was hard to figure out why we were bruising so bad and why we had a rough time with bleeding but… read more

posted 8 days ago

Being Given Advate After A Procedure And You Have Von Willebrand's Type 2b

Being Given Advate After A Procedure And You Have Von Willebrand's Type 2b

My son, like myself, has von Willebrand's type 2b. He is having his wisdom teeth removed and is going to take Amicar and Vonvendi. Weird thing is advate is also on the list. Anyone else with vW been given this? It is usually given to hemophiliacs

A MyHemophiliaTeam Member said:

I've been given DDAVP

posted almost 2 years ago

Need Help Finding Others With The Same Very Rare Coag Profile

Need Help Finding Others With The Same Very Rare Coag Profile

Recently encountered a 6 year old kid that has the following coagulation profile...Severe F8 deficiency, very mild F9 deficiency and a low titer F8 inhibitor...does anyone else have the same profile???

A MyHemophiliaTeam Member said:

My son is 6mo old with f8 severe. I am 30 with f8 moderate, low vw but so far he has no inhibitor but i have no inhibitor perse but no tolerance to read more

posted about 2 years ago

Elbow Pain - Older Haemophiliacs

Elbow Pain - Older Haemophiliacs

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

A MyHemophiliaTeam Member said:

Yes. I am 62 with severe Hemophilia A and am currently experiencing chronic pain in both elbows, both ankles and both knees. Had total joint replacement… read more

posted about 2 years ago

Health Insurance

Health Insurance

I live in Michigan, and we have Childrens Special Health, that covers hospitalizations, factor, and supplies, with no cap.
I'm looking to moving somewhere possibly warmer in the future, and I'm curious about coverage in other states. I'm a very special, and severe case, and want to be sure I'll get the coverage that would keep me healthy.
If you care to share, that would be amazing.

A MyHemophiliaTeam Member said:

If you have hep c don't come to sc Medicaid will denie you for treatment.

posted over 4 years ago

Is There Anyone That Would Recommend A Supplement Insurance For Copay And Etc.?

Is There Anyone That Would Recommend A Supplement Insurance For Copay And Etc.?

Looking for help with copay and supplement insurance similar to Aflac or etc.? Anyone have any suggestions out there? Thanks

A MyHemophiliaTeam Member said:

I believe there is a hemophiliac organization in all states that can help with payments and other things

posted 7 months ago