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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Stimate"

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Joint Bleeds
A MyHemophiliaTeam Member asked a question 💭

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

A MyHemophiliaTeam Member

I have VWD and have always been told it’s a Factor VIII deficiency.

Surgery For Hemophilia Carriers
A MyHemophiliaTeam Member asked a question 💭

Has anyone who is a known hemophilia carrier with 50% factor levels had surgery.
My sister is due to have a knee replacement. What was your experience and what did you have to do pre surgery and post op?
Please share your experiences. Thanks

A MyHemophiliaTeam Member

Your sister should coordinate her care with surgeon and Hemophilia Treatment Center closest to her. It may be wise to consider factor replacement therapy or at very leat Stimate.

Whats The Best Healthcare Coverage Plan For Hemophiliacs If You Are Not Employed?
A MyHemophiliaTeam Member asked a question 💭

My current situation is that I am 28 years old and am about to start medical school in a state outside my own (I am a Minnesota resident and will be going to Virginia for school). Since I am over 26, I can not enroll under my parents and I also will not be working and the school does not provide insurance. This leaves me with finding private healthcare coverage. Has anyone else dealt with a situation similar to this? I am afraid of the costs and the difficulty of living out-of-state which might… read more

A MyHemophiliaTeam Member

Check for MarketPlace plans under the Affordable Care Act

Tips For A Factor IX Who Travels For Work?
A MyHemophiliaTeam Member asked a question 💭

I have factor IX hemophilia. I graduate college on May 12th, 2017 and have a job which will put me on tour with a nationally touring band. What are some tips if you have any that could help? How to get more factor when I'm on the road, contacts I should have, how to get more equipment (needles, syringes, etc) if I need more, etc.
I only take factor on demand, so I don't run out quickly. Don't really see this being an issue, but any information and tips will be helpful.

A MyHemophiliaTeam Member

I am also Factor IX deficient and do alot of traveling, including work related prior to recently retiring.

I always carried 2 doses with me and kept close contact with my base hemophilia doctor… read more

Elbow Pain - Older Haemophiliacs
A MyHemophiliaTeam Member asked a question 💭

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

A MyHemophiliaTeam Member

Tremeau Phamaceutical is currently enrolling patients for study of a new Cox2 inhibitor for pain. Google them to see if there is a study site near you.

Being Given Advate After A Procedure And You Have Von Willebrand's Type 2b
A MyHemophiliaTeam Member asked a question 💭

My son, like myself, has von Willebrand's type 2b. He is having his wisdom teeth removed and is going to take Amicar and Vonvendi. Weird thing is advate is also on the list. Anyone else with vW been given this? It is usually given to hemophiliacs

A MyHemophiliaTeam Member

I've been given DDAVP

Need Help Finding Others With The Same Very Rare Coag Profile
A MyHemophiliaTeam Member asked a question 💭

Recently encountered a 6 year old kid that has the following coagulation profile...Severe F8 deficiency, very mild F9 deficiency and a low titer F8 inhibitor...does anyone else have the same profile???

A MyHemophiliaTeam Member

My son is 6mo old with f8 severe. I am 30 with f8 moderate, low vw but so far he has no inhibitor but i have no inhibitor perse but no tolerance to stimate as it was no longer effective.

Anyone Know If A Child With Hemophilia Has Ever Been Approved For SSI Because Of It?? Any Lawyers That Would Represent At Hearing In State?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Yes it took me 6 months from the day I applied for SSI & he qualified..having vonwillebrand.he has a life expectancy..

Health Insurance
A MyHemophiliaTeam Member asked a question 💭

I live in Michigan, and we have Childrens Special Health, that covers hospitalizations, factor, and supplies, with no cap.
I'm looking to moving somewhere possibly warmer in the future, and I'm curious about coverage in other states. I'm a very special, and severe case, and want to be sure I'll get the coverage that would keep me healthy.
If you care to share, that would be amazing.

A MyHemophiliaTeam Member

If you have hep c don't come to sc Medicaid will denie you for treatment.

I Have Factor IX Deficiency. I Am Trying To Get Dental Work Done But They Want To Charge Too Much. Are There Any Programs That Might Help?
A MyHemophiliaTeam Member asked a question 💭
A MyHemophiliaTeam Member

Why are they charging so much. Is it just because of the dental work or because your factor 8 deficient?