Anyone Know If A Child With Hemophilia Has Ever Been Approved For SSI Because Of It?? Any Lawyers That Would Represent At Hearing In State?

Where Can I Get Help With Getting Factor 8 If You Do Not Have Insurance Or Medicaid

My son 21 has no insurance and disability keeps denying him and so does Medicaid . we can't afford factor 8 for his bleeds . he has to drive an hour or more to another state just to get a factor 8 shot and that's an emergency room visit and Bill every time. Can we get help with getting factor 8 for him to have at home . please help me

Being Given Advate After A Procedure And You Have Von Willebrand's Type 2b

My son, like myself, has von Willebrand's type 2b. He is having his wisdom teeth removed and is going to take Amicar and Vonvendi. Weird thing is advate is also on the list. Anyone else with vW been given this? It is usually given to hemophiliacs

Need Help Finding Others With The Same Very Rare Coag Profile

Recently encountered a 6 year old kid that has the following coagulation profile...Severe F8 deficiency, very mild F9 deficiency and a low titer F8 inhibitor...does anyone else have the same profile???

Is There Anyone That Would Recommend A Supplement Insurance For Copay And Etc.?

Looking for help with copay and supplement insurance similar to Aflac or etc.? Anyone have any suggestions out there? Thanks

Health Insurance

I live in Michigan, and we have Childrens Special Health, that covers hospitalizations, factor, and supplies, with no cap.
I'm looking to moving somewhere possibly warmer in the future, and I'm curious about coverage in other states. I'm a very special, and severe case, and want to be sure I'll get the coverage that would keep me healthy.
If you care to share, that would be amazing.

Elbow Pain - Older Haemophiliacs

Are there any older guys with haemophilia that are experiencing chronic pain in both elbows. Right hand small finger has pins and needles feeling?

I Have Factor IX Deficiency. I Am Trying To Get Dental Work Done But They Want To Charge Too Much. Are There Any Programs That Might Help?