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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 4 Search Results for "Wilate"

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Joint Bleeds

Joint Bleeds

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

A MyHemophiliaTeam Member said:

Do you have specific questions

posted 5 months ago

Von Willie Brands Disease And Pregnancy

Von Willie Brands Disease And Pregnancy

Have any women on here gotten pregnant with vonwillie brands disease... I'm not pregnant that I know of and have a few questions

A MyHemophiliaTeam Member said:

Well, I've had a LOT of pregnancies...and kids...I did have one pregnancy where I continued to have periods and did not test +, even though I was CLEARLY pregnant (three months when I went to the… read more

posted over 3 years ago

Physical Therapy

Physical Therapy

I do pilates 2-3 days a week. I also walk 3 days a week. I find this has helped keep the pain in my joints, and all around well-being more positive. My question is: Is this too much?

A MyHemophiliaTeam Member said:

If you enjoy it, you are not in pain and your levels are good I don't see why it would be too much. I think the stretching walking and strength training helps the joints and muscles

posted about 4 years ago

For Mild Hemophilia- Females- How Do You Know When To Treat, What Symptoms Do You Experience That You Relate To A Bleed?

For Mild Hemophilia- Females- How Do You Know When To Treat, What Symptoms Do You Experience That You Relate To A Bleed?

As a newly diagnosed female (former symptomatic carrier without treatment) I am trying to understand what others are experiencing and what advice they are getting. I want to have some background info to bring to my local hematologist and my HTC. Since my diagnosis I have heard some people say treat for pain even without swelling or heat, others say that there has to be visible signs of a bleed..... what are your signs? tingling, throbbing, heat, swelling, redness, pain, limited ROM, muscle… read more

A MyHemophiliaTeam Member said:

Interesting since I had a total hysterectomy to resolve nonstop menstrual bleeding and now my last factor level was like 120....... I think that is why My Dr doesn't think I need treatment very much… read more

posted over 3 years ago