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Hemophilia

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Von Willie Brands Disease And Pregnancy

Von Willie Brands Disease And Pregnancy

Have any women on here gotten pregnant with vonwillie brands disease... I'm not pregnant that I know of and have a few questions

A MyHemophiliaTeam Member said:

Well, I've had a LOT of pregnancies...and kids...I did have one pregnancy where I continued to have periods and did not test +, even though I was… read more

posted almost 2 years ago

Physical Therapy

Physical Therapy

I do pilates 2-3 days a week. I also walk 3 days a week. I find this has helped keep the pain in my joints, and all around well-being more positive. My question is: Is this too much?

A MyHemophiliaTeam Member said:

If you enjoy it, you are not in pain and your levels are good I don't see why it would be too much. I think the stretching walking and strength training… read more

posted over 2 years ago

For Mild Hemophilia- Females- How Do You Know When To Treat, What Symptoms Do You Experience That You Relate To A Bleed?

For Mild Hemophilia- Females- How Do You Know When To Treat, What Symptoms Do You Experience That You Relate To A Bleed?

As a newly diagnosed female (former symptomatic carrier without treatment) I am trying to understand what others are experiencing and what advice they are getting. I want to have some background info to bring to my local hematologist and my HTC. Since my diagnosis I have heard some people say treat for pain even without swelling or heat, others say that there has to be visible signs of a… read more

A MyHemophiliaTeam Member said:

Interesting since I had a total hysterectomy to resolve nonstop menstrual bleeding and now my last factor level was like 120....... I think that is why… read more

posted about 2 years ago