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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 6 Search Results for "fatigue"

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Do Any Of You With Vwd Have Extreme Fatigue,joint Pain And Burning?
A MyHemophiliaTeam Member asked a question 💭

I can't seem to get enough sleep anymore. Somedays my joints hurt so bad I can hardly move and I am experiencing a terrible burning sensation around different joints when I move them. The most recent one is next to certain areas along my spine. My VWD is mild but this all worries me since it is happening more frequently.

A MyHemophiliaTeam Member

Are you being treated at a Hemophilia Treatment Center? You should see if you need additional treatment.

Mussel Spasms
A MyHemophiliaTeam Member asked a question 💭

Last night my son got a few mussel spasms .... is this a concern? Is this a symptom of a brain bleed that might have been missed? My son is sever Hemophilia Type A

A MyHemophiliaTeam Member

Get him to see doctor at Hemophilia Treatment Center.

I Have Von Willebrand
A MyHemophiliaTeam Member asked a question 💭

Does anyone have chronic pain I have it in neck back hips knees and ankles already have had 1 total knee and 1 total hip replacement

A MyHemophiliaTeam Member

Yes. And they just forced me to find a pain management doctor, even tho I’ve been to two pain programs. The rest, ice, compression, elevation. I used light compression socks around the house like… read more

I Am Wondering About Fatigue With Mild VWs.
A MyHemophiliaTeam Member asked a question 💭

My VW is mild, so I have not always given it the credit it deserves in causing complications in my life. But I was diagnosed with idiopathic hypersomnia (non REM narcolepsy) several years ago. I found out a year and a half ago I was misdiagnosed and had iatrogenic hypersomnia caused by an antidepressant. I thought I was completely cured when I stopped taking that medication, and my improvement really is a miracle. But I have always been a little more fatigued than the average person. I always… read more

A MyHemophiliaTeam Member

I get extremely fatigued even tho I’m mild...also looking for fatigue relief

Do Any Of You With VWD Experience Petechiae And Fatigue?
A MyHemophiliaTeam Member asked a question 💭

For the last couple of months, I've experienced periodic extreme fatigue and I get petechiae (small red dotted rash) on my legs and chest. Are these typical symptoms any of you have experienced with your Von Willebrand Disease? What do you do about it?

A MyHemophiliaTeam Member

VWD and get petechia on my arms and chest.

Have Any Of You Her About A Bleeding Disorder Where You Bleed Like Hemophilia But Also Through Clots?
A MyHemophiliaTeam Member asked a question 💭

Vonwilabrands runs in my family. From sever to moderate. So bleeding is something we are used to but past several years my grandmother has been throwing clots as well. It looks like something that may occur in older age. Her hematologist just said that she is unique which I don't think is really an answer. Her clotting factor fluctuates as well from 27% to normal. Has anyone else had any experience with this? I have asked around and googled but no real answers. Trying to find out before it… read more

A MyHemophiliaTeam Member

I have VWD, but also have a condition called "Antiphospholipid antibodies" that creates clots in places like legs, lungs, and brain. You wouldn't think that with a bleeding disorder you could create a… read more