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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 6 Search Results for "fatigue"

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I Am Wondering About Fatigue With Mild VWs.

I Am Wondering About Fatigue With Mild VWs.

My VW is mild, so I have not always given it the credit it deserves in causing complications in my life. But I was diagnosed with idiopathic hypersomnia (non REM narcolepsy) several years ago. I found out a year and a half ago I was misdiagnosed and had iatrogenic hypersomnia caused by an antidepressant. I thought I was completely cured when I stopped taking that medication, and my improvement really is a miracle. But I have always been a little more fatigued than the… read more

A MyHemophiliaTeam Member said:

I get extremely fatigued even tho I’m mild...also looking for fatigue relief

posted over 1 year ago

Do Any Of You With VWD Experience Petechiae And Fatigue?

Do Any Of You With VWD Experience Petechiae And Fatigue?

For the last couple of months, I've experienced periodic extreme fatigue and I get petechiae (small red dotted rash) on my legs and chest. Are these typical symptoms any of you have experienced with your Von Willebrand Disease? What do you do about it?

A MyHemophiliaTeam Member said:

VWD and get petechia on my arms and chest.

posted 8 months ago

Do Any Of You With Vwd Have Extreme Fatigue,joint Pain And Burning?

Do Any Of You With Vwd Have Extreme Fatigue,joint Pain And Burning?

I can't seem to get enough sleep anymore. Somedays my joints hurt so bad I can hardly move and I am experiencing a terrible burning sensation around different joints when I move them. The most recent one is next to certain areas along my spine. My VWD is mild but this all worries me since it is happening more frequently.

A MyHemophiliaTeam Member said:

Yes
I do. I also have vonwillebrands that is not too bad.

posted about 2 months ago

I Have Von Willebrand

I Have Von Willebrand

Does anyone have chronic pain I have it in neck back hips knees and ankles already have had 1 total knee and 1 total hip replacement

A MyHemophiliaTeam Member said:

I use a lot of pepperment oild and jajoba oild mixed for joint pain that helps

posted 5 months ago

Mussel Spasms

Mussel Spasms

Last night my son got a few mussel spasms .... is this a concern? Is this a symptom of a brain bleed that might have been missed? My son is sever Hemophilia Type A

A MyHemophiliaTeam Member said:

Yes! Get as many blood tests as possible. Do your own research beforehand because it’s important for you to understand what could be causing the… read more

posted over 1 year ago

Have Any Of You Her About A Bleeding Disorder Where You Bleed Like Hemophilia But Also Through Clots?

Have Any Of You Her About A Bleeding Disorder Where You Bleed Like Hemophilia But Also Through Clots?

Vonwilabrands runs in my family. From sever to moderate. So bleeding is something we are used to but past several years my grandmother has been throwing clots as well. It looks like something that may occur in older age. Her hematologist just said that she is unique which I don't think is really an answer. Her clotting factor fluctuates as well from 27% to normal. Has anyone else had any experience with this? I… read more

A MyHemophiliaTeam Member said:

I have VWD, but also have a condition called "Antiphospholipid antibodies" that creates clots in places like legs, lungs, and brain. You wouldn't think… read more

posted about 2 years ago