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Getting Your Medical Records Is Supposed To Be Easy

Posted on November 29, 2018

By Robert Preidt, HealthDay Reporter

FRIDAY, Oct. 5, 2018 (HealthDay News) -- U.S. patients face numerous roadblocks when trying to access their medical records at the nation's top hospitals, a new study finds.

Federal law says patients must be given access to their medical records in a timely manner, in their preferred format
and at a reasonable cost. But Yale University researchers found many hospitals make the process too confusing or expensive.


"There were overwhelming inconsistencies in information relayed to patients regarding the personal health information they are allowed to request, as well as the formats and costs of release, both within institutions and across institutions," said Carolyn Lye, the study's first author.

"We also found considerable noncompliance with state and federal regulations and recommendations with respect to the costs and processing times," Lye, a medical student, said in a university news release.

She and her colleagues evaluated the medical records departments at 83 top-ranked hospitals in 29 states.


On their record request forms, only 53 percent of the hospitals gave patients an option to access their full medical record. But when asked over the telephone, all 83 hospitals said they could release full medical records to patients.

There were also discrepancies between request forms and phone information about formats in which medical records could be released (electronic, paper or in person).

The researchers also found that 58 percent of the hospitals charged more than the federally recommended $6.50 for medical records stored electronically. One hospital charged $541.50 for a 200-page record.

The study was published online Oct. 5 in JAMA Network Open.

Stricter enforcement of the patients' right of access is necessary to ensure that the request process across hospitals is easy to navigate, timely and affordable,
Lye suggested.

"We are also in an era in which patients are participants in their own health care," she added. "Inhibiting access for patients to their own medical records with complicated, lengthy and costly request processes prevents patients from obtaining information that they may need to better understand their medical conditions and communicate with their physicians."

More information: HealthIT.gov has more on accessing your medical records.

SOURCE: Yale University, news release
Copyright © 2018 All rights reserved.

Here are some questions and conversations from MyHemophiliaTeam:

Does anyone with Type 1 VWD wear a medical alert bracelet?

"I distinctly filled out the HIPPA form to not discuss my health with one person and after talking to a staff member they started relaying to me in an obvious slip that they had been discussing my progress and info with that person daily..."

"The Hematologist has been very understanding and has been cool with my recommendations, concerns, and knowledge. After 48 years of dealing with Hemophilia, he realizes that I know what’s needed."

Have you had first-hand experience with attempting to obtain medical records? Share in the comments below or directly on MyHemophiliaTeam.

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