Factor infusions are a common treatment for hemophilia. Infusions can be ongoing, prophylactic, or in reaction to bleeds as they happen. Finding a vein, learning to self-infuse, minimizing pain, and avoiding inhibitors are all part of the steep learning curve that people with hemophilia deal with every day.
On MyHemophiliaTeam, the social network and online support group for those living with hemophilia members talk about a range of personal experiences and struggles. Infusions are one of the top 10 topics most discussed.
Here are a few question-and-answer threads about infusions:
When surgery is needed, how do you get oncologists/hematologists to work with surgeons to arrange surgery, infusions, and observation?
Does anybody know if cortisol levels affect bleeding/factor levels?
Here are conversations that have taken place about infusions:
I found a new treatment for my bleeding during a busy holiday.
Have another topic you'd like to discuss or explore? Go to MyHemophiliaTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.