Connect with others who understand.

sign up log in
About MyHemophiliaTeam

MyHemophiliaTeam Announces New Partnership With the National Hemophilia Foundation (NHF)

Posted on March 07, 2016

MyHemophiliaTeam is excited to announce a new partnership with The National Hemophilia Foundation (NHF) during Bleeding Disorders Awareness Month this March. Building awareness is important, and so is connecting with us who have been in your shoes. MyHemophiliaTeam is a free, password-protected social network that you can access on your phone, tablet or computer. You’ll be able to gain perspective, share tips, get support, ask questions and get answers based on others’ personal experiences, and the daily validation that you’re not alone.

You can read the NHF announcement at: National Hemophilia Foundation.

Before launching MyHemophiliaTeam, we reached out to the leading organizations in the hemophilia community, including members of local bleeding disorder chapters, the National Hemophilia Foundation, the Hemophilia Federation of America and the Coalition for Hemophilia B. These conversations have been honest, critical and informative, as we have worked to establish a safe environment for those in the community. Community outreach doesn’t end with these initial conversations. It’s an ongoing dialogue that we will continue through your feedback on MyHemophiliaTeam.com. We greatly appreciate the initial input we have received from these leaders and the ongoing support and alignment of efforts.

If you belong to one of these great organizations or local chapters, we encourage you to add them to your team on MyHemophilaTeam, and connect with other local members.

A MyHemophiliaTeam Member said:

New to this group, but we have a great chapter, and I have participated with some other organizations . Still trying to figure out how this group works,… read more

posted over 3 years ago

hug

Recent articles

Coronavirus
Article written by Kelly Crumrin Those of us living with pre-existing, chronic conditions such as...

Canceling Is Kindness: Keeping Safe From COVID-19 With Hemophilia

Article written by Kelly Crumrin Those of us living with pre-existing, chronic conditions such as...
Setting intentions for 2020 with hemophilia
Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...

Setting Intentions for 2020 With Hemophilia

Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...
Practicing gratitude with hemophilia
This time of the year can be overwhelming with expectations around the holidays, and living with...

Practicing Gratitude With Hemophilia

This time of the year can be overwhelming with expectations around the holidays, and living with...
Enjoying the holidays while living with hemophilia
Living with or caring for someone with hemophilia may change your holidays, but you can still...

Enjoying the Holidays While Living With Hemophilia

Living with or caring for someone with hemophilia may change your holidays, but you can still...
Mht af justdiagnosed male
We all respond differently to information about our health. After learning you or a loved one has...

You’ve Just Been Diagnosed With Hemophilia. Now What?

We all respond differently to information about our health. After learning you or a loved one has...
How good boundaries make life with hemophilia easier
There is an old saying: “Good fences make good neighbors.” Having healthy boundaries in...

How Good Boundaries Make Life With Hemophilia Easier

There is an old saying: “Good fences make good neighbors.” Having healthy boundaries in...
Bsp fb 5
Thousands of members of MyHemophiliaTeam connect with one another and read each other's stories...

Four Books About Hemophilia You Should Read

Thousands of members of MyHemophiliaTeam connect with one another and read each other's stories...
Talking to doctors about hemophilia symptoms
Many members on MyHemophiliaTeam describe challenges in talking to their doctors about bleeding...

Talking to Doctors About Hemophilia Symptoms

Many members on MyHemophiliaTeam describe challenges in talking to their doctors about bleeding...
Hemophilia and living with fear
Living with a bleeding disorder sometimes means living with fear. MyHemophiliaTeam members...

Hemophilia and Living With Fear

Living with a bleeding disorder sometimes means living with fear. MyHemophiliaTeam members...
Mht af saying thinking 2
Living with hemophilia or caring for someone with a bleeding disorder can mean having limited...

Tap Into the Power of Directness: Use "I"

Living with hemophilia or caring for someone with a bleeding disorder can mean having limited...
MyHemophiliaTeam My hemophilia Team

Two Ways to Get Started with MyHemophiliaTeam

Become a Member

Connect with others who are living with hemophilia. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about hemophilia sent to your inbox.

Not now, thanks

Privacy policy
MyHemophiliaTeam My hemophilia Team

Thank you for signing up.

close