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What Alex Borstein's Hemophilia Diagnosis Does for the Rest of Us

Posted on June 11, 2019

When Alex Borstein, actress and voice of Lois Griffin on the hit TV show "Family Guy," revealed she has mild hemophilia and is a carrier, a wave of empathy and validation washed over the bleeding disorder community. “Wow. Even her, too?”

Three things happen for us when a celebrity opens up about a diagnosis and shares the fact of their chronic illness with us.

First, they help to destigmatize the condition. The condition becomes more visible and relatable. Suddenly, we see our friends and family changing their attitudes toward our condition, and even toward us.

Second, we feel more hopeful and inspired in our own life. Knowing that a celebrity is facing the same day-to-day struggles we do, all while under the glare of stardom, we are more endeared toward them. We especially feel a connection when they use their voice to bring visibility to hemophilia.

Finally, we feel empowered by the will of celebrities to step forward and take control of the narrative about their condition under intense media scrutiny. When they show the world what it means to live with hemophilia, they offer a roadmap and inspire confidence for how we might do the same.

Whether famous or not, the public acknowledgment of one’s disease is a brave act in the face of the stigma of chronic disease. As hemophilia awareness spreads, acceptance soon follows.

Is there a notable person who has inspired you? How do you feel about celebrities discussing their condition? Share in the comments below or post on MyHemophiliaTeam.

A MyHemophiliaTeam Member said:

She also appeared on Genentech’s YouTube channel Challenge Accepted. It was a really good episode.

posted about 1 year ago

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