Have any of you her about a bleeding disorder where you bleed like hemophilia but also through clots?

Have any of you her about a bleeding disorder where you bleed like hemophilia but also through clots?

Vonwilabrands runs in my family. From sever to moderate. So bleeding is something we are used to but past several years my grandmother has been throwing clots as well. It looks like something that may occur in older age. Her hematologist just said that she is unique which I don't think is really an answer. Her clotting factor fluctuates as well from 27% to normal. Has anyone else had any experience with this? I… read more

A MyHemophiliaTeam Member said:

I have VWD, but also have a condition called "Antiphospholipid antibodies" that creates clots in places like legs, lungs, and brain. You wouldn't think that with a bleeding disorder you could create a clot but apparently you can...

posted over 1 year ago
A MyHemophiliaTeam Member said:

Throwing clots? I know Ive always had a issue with clots during my monthlys, sometimes id skip the napkins and use a towel, it was tbat bad. I bruise badly and am chronically fatigued my brother and son both were diagnosed with it as children but I don't know much about it? I believe my sons dr told me he would grow out of it? Does anyone know where I can find more detailed information please? Rita

posted over 1 year ago
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