Just remember this and say this to them as I do when they ever meet this lone wolf, you look them straight into their eyes and you say with all respect I don't care about any of your diploma and any of ur awards who knows more about this condition because it's not considered a illness we have a condition you work for me and I'll listen to whatever advice you have to give me but always remember who knows this condition better then me doc ok.... That how you let them know ur not no test subject....and good luck my brother and if they don't wanna listen then you call ur back all ur bloodline brothers and we got ur back

Thank you for sharing...I decided that day that this team would not be cutting on me...we have moved the surgery to a much bigger metropolis....they are only doctors..and I agree they feel above us thank you again

I have had a couple experiences like that but luckily a couple other people on the surgery team reviewed my hospital file and made sure that they called my hematologist prior to operating on me... Usually if you'll just ask the ignorant doctor or surgeon to double check ur file (especially in front of any other doctors or nurses) they'll dig a little deeper and see that u actually have a life threatening illness that they absolutely cannot ignore... Although... They are DOCTORS and they think their brains are superior to all other humans... I've not met but a handful of them that can actually admit it if they were wrong or ask for your opinion and try to get some background from u and inform u that they've never had a hemophilia patient... I'm still here cause of quite a bit of luck when I needed it... I wish u the best my friend