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Real members of MyHemophiliaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 8 Search Results for "Clinical trials"

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Joint Bleeds

Joint Bleeds

I have von Willebrands disease. I really don’t know much about it. I was told its a relatively minor case but that’sall i know. I don’t know what to expect with this disease and have a lot of body pain and headaches. I’m not sure if any of this is from vwd or if it’smy other conditions.

A MyHemophiliaTeam Member

You can research it on Google. It’s a factor 8 Deficiency, if you have internal bleeding or heavy periods you can take medications to add factor 8, or sometimes people react well to stimate. Swelling… read more

Blood Types?

Blood Types?

I am curious, my husband has O negative blood and his friend also has negative blood. These are the only 2 hemophiliacs I know. I was wondering if there is a correlation with negative blood and hemophilia? Also, my husband has a MTHFR mutation, which makes his body less able to detox, among other things. I do not know about his friend’s status on this, but we found out through 23&me and genetic genie. Does anyone else know their status as far as blood type and/or MTHFR mutation, specifically 677… read more

A MyHemophiliaTeam Member

My oldest son was A positive blood type; second son was 0 positive blood type, both had hemophilia VIII-severe

Big Bruise To Forehead

Big Bruise To Forehead

Hi, my 3 year old son has moderate hemophilia, level 3.

He had a nasty bruise on his forehead that has swelled up to a golf ball size, and has rebled a little.

Apart from trans acid, is there anything any of you guys have used to stop the bleeding and support recovery?

We are very worried

Thanks so much

David

A MyHemophiliaTeam Member

When my son was small he seemed to get those at least twice monthly. I discovered an ace bandage around his head with a small soft ice pack tucked inside helped get rid of them or keep them from… read more

I'm Wondering Does Hemophilia Cause Us To Have More Intense Pain Than Normal People???? My Pain Has Become Almost Unbearable At Times.

I'm Wondering Does Hemophilia Cause Us To Have More Intense Pain Than Normal People???? My Pain Has Become Almost Unbearable At Times.

A MyHemophiliaTeam Member

Isn’t pain relative to the person that feels it. Since I’ve grown up bleeding I don’t try to compare to a “normal” who hasn’t had regular bleeds. I only compare my pain to myself. So if you are… read more

Doctor Hemophiliac

Doctor Hemophiliac

Who recommend me a good adult doctor for hemophilia in San Antonio my Sinn has been seeing by the children's hospital but is the children's clinic and we are looking for an adult hematology doctor who recommend a good one

A MyHemophiliaTeam Member

I would research you local hemophilia chapter or National hemophilia association or American Hemophilia Association they can recommend and HTC hemophilia treatment center. The hemotology does not… read more

Lawyer For SSI Or Ssd ?

Lawyer For SSI Or Ssd ?

Received SSI until age of 26 then income interfere with it since 2006 been replying use all my work credits and been turn down for SSI they stated my condition has improved how do I go about getting lawyer or help getting this back low income no health insurance has really caused my condition to worsen

A MyHemophiliaTeam Member

SSI is for poor people, SSDI is for people too disabled to work. They both have income and asset requirements. Like you can have two cars or $10,000 in the bank etc. the hemo clinic found me a lawyer… read more

Bariatric Surgery And Von Willdebrands Disease

Bariatric Surgery And Von Willdebrands Disease

Hello, I was wondering if anyone with hemophilia has had bariatric surgery or any Marjory surgery? I was wondering how the surgery went and if there were any complications? I am considering surgery . Even though I have a very mild form of hemophilia one surgeon said he wouldn't risk it and the other one said it's no big deal?. I was just looking for advice from others who has been through it and the out comes..

A MyHemophiliaTeam Member

Sorry, I know it's been awhile, and you may have had your procedure already. I have had extensive surgeries done, and with preplanning and my HTC doctor's orders in place, I have not had problems… read more