Resources

Articles

Resourcetile blog01
Catch up on the latest updates, events, and voices of others living with hemophilia.
Sort by Sort by
Setting intentions for 2020 with hemophilia

Setting Intentions for 2020 With Hemophilia

Setting Intentions for 2020 With Hemophilia

Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made similar New Year’s resolutions over the years. And many of us have also ended January feeling like failures because we didn’t follow through perfectly. We...
Posted 01/06/2020
Practicing gratitude with hemophilia

Practicing Gratitude With Hemophilia

Practicing Gratitude With Hemophilia

This time of the year can be overwhelming with expectations around the holidays, and living with hemophilia doesn’t make it any easier. One way to find some relief from the pressure and stress is to focus on gratitude. You might find gratefulness...
Posted 11/27/2019
Enjoying the holidays while living with hemophilia

Enjoying the Holidays While Living With Hemophilia

Enjoying the Holidays While Living With Hemophilia

Living with or caring for someone with hemophilia may change your holidays, but you can still have enjoyable and meaningful celebrations. Although hemophilia may make some holiday traditions challenging, it doesn't mean you can't enjoy connecting...
Posted 10/28/2019
Mht af justdiagnosed male

You’ve Just Been Diagnosed With Hemophilia. Now What?

You’ve Just Been Diagnosed With Hemophilia. Now What?

We all respond differently to information about our health. After learning you or a loved one has a bleeding disorder, you might be stunned, scared, or even relieved to have answers that explain bruising, spontaneous bleeding, and joint pain. No...
Posted 10/03/2019
How good boundaries make life with hemophilia easier

How Good Boundaries Make Life With Hemophilia Easier

How Good Boundaries Make Life With Hemophilia Easier

There is an old saying: “Good fences make good neighbors.” Having healthy boundaries in relationships is important for everyone, especially for people with a chronic condition like hemophilia. Setting and defending boundaries allows you to protect...
Posted 09/11/2019
Bsp fb 5

Four Books About Hemophilia You Should Read

Four Books About Hemophilia You Should Read

Thousands of members of MyHemophiliaTeam connect with one another and read each other's stories to gain perspective and validation about living with hemophilia. Another way to discover how to live better with a bleeding disorder is through books...
Posted 09/10/2019
Talking to doctors about hemophilia symptoms

Talking to Doctors About Hemophilia Symptoms

Talking to Doctors About Hemophilia Symptoms

Many members on MyHemophiliaTeam describe challenges in talking to their doctors about bleeding disorder symptoms. “So sick of crappy doctors who ignore you!” posted one member. If you have experienced the frustration of having your symptoms...
Posted 09/05/2019
Hemophilia and living with fear

Hemophilia and Living With Fear

Hemophilia and Living With Fear

Living with a bleeding disorder sometimes means living with fear. MyHemophiliaTeam members describe fears about bleeds – fear for themselves and their children, fear about surgeries, dental work, and normal daily activities. Members recommend ways...
Posted 09/04/2019
Mht af saying thinking 2

Tap Into the Power of Directness: Use "I"

Tap Into the Power of Directness: Use "I"

Living with hemophilia or caring for someone with a bleeding disorder can mean having limited energy, time, and bandwidth. You may find yourself needing to say "no" more often than other people do. Do you have a tough time being direct with others...
Posted 08/15/2019
Mht takingcareofmyself fb v2

Who's the One Person You Should Always Keep Your Promise To?

Who's the One Person You Should Always Keep Your Promise To?

Keeping promises to yourself is a way to focus on self-nurture. This could mean making a commitment to "you" time on a regular basis to tend to yourself. Keep a regular date with yourself to focus on whatever helps you feel calm and centered in...
Posted 07/16/2019
MyHemophiliaTeam My hemophilia Team

Get the latest articles about hemophilia sent to your inbox.

Not now, thanks

Privacy policy
MyHemophiliaTeam My hemophilia Team

Thank you for signing up.

close