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Catch up on the latest updates, events, and voices of others living with hemophilia.
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Periods and Hemophilia

Hemophilia is complicated for women, who must deal with monthly bleeding from periods. People with hemophilia have blood that doesn't clot correctly, so any bleeding needs to be carefully managed. Many women find that their monthly cycles are...
Posted 12/14/2018
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Getting Your Medical Records Is Supposed To Be Easy

By Robert Preidt, HealthDay ReporterFRIDAY, Oct. 5, 2018 (HealthDay News) -- U.S. patients face numerous roadblocks when trying to access their medical records at the nation's top hospitals, a new study finds.Federal law says patients must be...
Posted 11/29/2018
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What are you thankful for?

As the year comes to a close, many of us at MyHemophiliaTeam are reflecting on the year and what we're thankful for. Living with hemophilia and other bleeding disorders isn't easy, but taking a moment to share gratitude with the community can help...
Posted 11/20/2018
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Another Gene Therapy Breakthrough Against Hemophilia

By E.J. Mundell, HealthDay ReporterSATURDAY, Dec. 9, 2017 (HealthDay News) -- Coming just days after reports of a gene therapy that pushed the bleeding disorder hemophilia B into remission, new research suggests the same could be true for adults...
Posted 10/30/2018
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Gene Therapy May Allow Hemophilia Patients to Go Without Meds

By Maureen Salamon, HealthDay ReporterWEDNESDAY, Dec. 6, 2017 (HealthDay News) -- Gene therapy has helped 10 men with a form of the bleeding disorder hemophilia produce a critical blood clotting factor. This could eliminate the need for tedious...
Posted 10/26/2018
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Replace Fear-Based Thinking with Love-Based Thinking

"Replace fear-based thinking with love-based thinking. Every time you're making a choice, ask yourself if it's going to cultivate the experience of unity and love or the experience of separation and stress." – Deepak ChopraWe all experience fear....
Posted 09/09/2018
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Acceptance: Realigning Expectations and Extending Grace to Ourselves

"But that's not the way it's supposed to be!" is a common thing we say when our expectations fall short. It happens to all of us. Some members of MyHemophiliaTeam have found the practice of "allowing and letting be" in the midst of a trying to be...
Posted 08/30/2018
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What fruits and vegetables are in season?

One way to eat a healthier diet and include more fruits and vegetables is to eat what’s seasonally available. There’s a farmer’s market close to the office, so this past week's purchases were a cantaloupe, some basil, a couple of peaches. Time for...
Posted 08/26/2018
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The Importance of Trusting Yourself

Studies have shown that the more we take ownership of our condition, the more engaged we are in maintaining behaviors that help us live better.An important factor in having the confidence to take this ownership is self-trust."If something doesn't...
Posted 08/16/2018
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Hemophilia – An Overview

Hemophilia is a rare bleeding disorder usually caused by certain genes. Most often, hemophilia genes are passed down in families, although some hemophilia cases are the result of a random genetic mutation. Because of the way the gene for...
Posted 08/13/2018
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