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Catch up on the latest updates, events, and voices of others living with hemophilia.
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Tap Into the Power of Directness: Use "I"

Tap Into the Power of Directness: Use "I"

Living with hemophilia or caring for someone with a bleeding disorder can mean having limited energy, time, and bandwidth. You may find yourself needing to say "no" more often than other people do. Do you have a tough time being direct with others...
Posted 08/15/2019
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Who's the One Person You Should Always Keep Your Promise To?

Who's the One Person You Should Always Keep Your Promise To?

Keeping promises to yourself is a way to focus on self-nurture. This could mean making a commitment to "you" time on a regular basis to tend to yourself. Keep a regular date with yourself to focus on whatever helps you feel calm and centered in...
Posted 07/16/2019
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Telling White Lies

Telling White Lies

Have you ever told a white lie to be kind, to protect the feelings of others, or maybe to simply avoid stigma? You're not alone.For some living with a chronic condition, telling a white lie can be a way to save one's strength. Sometimes it's...
Posted 06/26/2019
Celebobe

What Alex Borstein's Hemophilia Diagnosis Does for the Rest of Us

What Alex Borstein's Hemophilia Diagnosis Does for the Rest of Us

When Alex Borstein, actress and voice of Lois Griffin on the hit TV show "Family Guy," revealed she has mild hemophilia and is a carrier, a wave of empathy and validation washed over the bleeding disorder community. “Wow. Even her, too?”Three...
Posted 06/11/2019
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Say "No" by Saying "Yes" to Something Else

Say "No" by Saying "Yes" to Something Else

Saying "no" with grace and honesty can be challenging. Sometimes our fear of ending a conversation awkwardly or letting a friend or relative down can nudge us into saying "yes" to things that are difficult for us. When managing a chronic...
Posted 06/05/2019
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Putting Yourself First

Putting Yourself First

Have you ever put someone’s else’s needs ahead of your own? We all do it - we’re human, after all. There is a name for this generous tendency. Economists refer to this situation, when one person's well-being cannot be improved without making...
Posted 05/16/2019
Sayingnoaf

Are You Afraid to Say No?

Are You Afraid to Say No?

Yes. No. I mean – maybe? Well, okay. Have you ever wanted to be able to say "no" without feeling guilty? Without feeling you're letting someone down? Many of us struggle with disappointing anyone with a 'no.' At the same time, those two letters,...
Posted 05/01/2019
Flowergirl

Developing Self-Compassion: How to Show Yourself Some Love

Developing Self-Compassion: How to Show Yourself Some Love

By Len Canter, HealthDay ReporterFRIDAY, Feb. 8, 2019 (HealthDay News) -- A lot of importance is placed on developing self-esteem to create emotional well-being and to quiet the inner critic that causes people to doubt themselves. But even more...
Posted 03/18/2019
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'Bone Cement': A Non-Surgical Option for Painful Joints?

'Bone Cement': A Non-Surgical Option for Painful Joints?

By Dennis Thompson, HealthDay ReporterTHURSDAY, Jan. 11, 2018 (HealthDay News) -- Injecting a calcium-based cement into the bones of some people with knee or hip pain could help them avoid joint replacement surgery, Ohio State University doctors...
Posted 02/14/2019
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Physical Therapy Can Help Avoid Opioids When Joint Pain Strikes

Physical Therapy Can Help Avoid Opioids When Joint Pain Strikes

By Amy Norton, HealthDay ReporterFRIDAY, Dec. 14, 2018 (HealthDay News) -- People who get prompt physical therapy for pain in the knee, shoulder or lower back may have less need for opioid painkillers, new research suggests.The study, of nearly...
Posted 12/20/2018
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