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Catch up on the latest updates, events, and voices of others living with hemophilia.
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You’ve Just Been Diagnosed With Hemophilia. Now What?

You’ve Just Been Diagnosed With Hemophilia. Now What?

We all respond differently to information about our health. After learning you or a loved one has a bleeding disorder, you might be stunned, scared, or even relieved to have answers that explain bruising, spontaneous bleeding, and joint pain. No...
Posted 10/03/2019
How good boundaries make life with hemophilia easier

How Good Boundaries Make Life With Hemophilia Easier

How Good Boundaries Make Life With Hemophilia Easier

There is an old saying: “Good fences make good neighbors.” Having healthy boundaries in relationships is important for everyone, especially for people with a chronic condition like hemophilia. Setting and defending boundaries allows you to protect...
Posted 09/11/2019
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Four Books About Hemophilia You Should Read

Four Books About Hemophilia You Should Read

Thousands of members of MyHemophiliaTeam connect with one another and read each other's stories to gain perspective and validation about living with hemophilia. Another way to discover how to live better with a bleeding disorder is through books...
Posted 09/10/2019
Talking to doctors about hemophilia symptoms

Talking to Doctors About Hemophilia Symptoms

Talking to Doctors About Hemophilia Symptoms

Many members on MyHemophiliaTeam describe challenges in talking to their doctors about bleeding disorder symptoms. “So sick of crappy doctors who ignore you!” posted one member. If you have experienced the frustration of having your symptoms...
Posted 09/05/2019
Hemophilia and living with fear

Hemophilia and Living With Fear

Hemophilia and Living With Fear

Living with a bleeding disorder sometimes means living with fear. MyHemophiliaTeam members describe fears about bleeds – fear for themselves and their children, fear about surgeries, dental work, and normal daily activities. Members recommend ways...
Posted 09/04/2019
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Tap Into the Power of Directness: Use "I"

Tap Into the Power of Directness: Use "I"

Living with hemophilia or caring for someone with a bleeding disorder can mean having limited energy, time, and bandwidth. You may find yourself needing to say "no" more often than other people do. Do you have a tough time being direct with others...
Posted 08/15/2019
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Who's the One Person You Should Always Keep Your Promise To?

Who's the One Person You Should Always Keep Your Promise To?

Keeping promises to yourself is a way to focus on self-nurture. This could mean making a commitment to "you" time on a regular basis to tend to yourself. Keep a regular date with yourself to focus on whatever helps you feel calm and centered in...
Posted 07/16/2019
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Telling White Lies

Telling White Lies

Have you ever told a white lie to be kind, to protect the feelings of others, or maybe to simply avoid stigma? You're not alone.For some living with a chronic condition, telling a white lie can be a way to save one's strength. Sometimes it's...
Posted 06/26/2019
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What Alex Borstein's Hemophilia Diagnosis Does for the Rest of Us

What Alex Borstein's Hemophilia Diagnosis Does for the Rest of Us

When Alex Borstein, actress and voice of Lois Griffin on the hit TV show "Family Guy," revealed she has mild hemophilia and is a carrier, a wave of empathy and validation washed over the bleeding disorder community. “Wow. Even her, too?”Three...
Posted 06/11/2019
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Say "No" by Saying "Yes" to Something Else

Say "No" by Saying "Yes" to Something Else

Saying "no" with grace and honesty can be challenging. Sometimes our fear of ending a conversation awkwardly or letting a friend or relative down can nudge us into saying "yes" to things that are difficult for us. When managing a chronic...
Posted 06/05/2019
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