Caring for a child or teen with hemophilia isn't easy. It can be lonely to have the responsibility of advocating for your family by yourself. Support and advice from others can you help avoid isolation.
On MyHemophiliaTeam, the social network and online support group for those living with hemophilia and other bleeding disorders, members talk about a range of personal experiences and struggles. Being a parent of a child with a bleeding disorder is one of the top 10 topics most discussed.
Here are some conversations about parenting children with bleeding disorders:
• I have a 14-month-old with a moderate factor viii deficiency (3-4%) and he's been learning to walk. I'd be curious to hear about your experiences with a moderate toddler learning to walk.
• I'm the Mom of a grown daughter with Von Wille Brands. As her Mom making choices that could change her life I was terrified!
• I am concerned about my VWD and platelet storage pool daughter.
Here are some question and answer threads about being a parent of a child with a bleeding disorder:
• Anyone know if a child with Hemophilia has ever been approved for SSI because of it?
• Last night my son had muscle spasms. Is this something we should be worried about?
• Did you have any complications during pregnancy and childbirth?
• How do I discourage my 17-year-old severe Hemo type A son, not to buy a motorcycle?
Can you relate?
Have another topic you'd like to discuss or explore? Go to MyHemophiliaTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.