Connect with others who understand.

sign up log in
About MyHemophiliaTeam

Impact of Pain on Quality of Life for People Living with Hemophilia

Posted on December 16, 2017

While people with hemophilia A are known to suffer from bleeding, numerous other symptoms can also be a burden, including pain. Members of MyHemophiliaTeam who have hemophilia A responded to an online survey to share how other symptoms impact their daily life. Members described pain, in particular, as having a significant impact on quality of life, including disrupting sleep, limiting work, causing social withdrawal, and leading to inactivity.

Source: What Endpoints Matter Most in Hemophilia? April, 2017 survey of MyHemophiliaTeam members conducted in partnership with Bioverativ. Question: In the past 3 months, in what ways, if any, has pain impacted your quality of life? Check all that apply. (Sample size = 26 adults and 28 caregivers).

What hemophilia symptom has had the biggest effect on your life? Share with other members in a comment below.

A MyHemophiliaTeam Member said:

I'm in the same. I've turned to CBD to help and other for worse pain. Only thing is it's not paid by insurance so I'm having to find ways to pay for it. The pain Dr. Treated me like I was a druggie… read more

posted over 2 years ago

hug (1)

Recent articles

Hemophilia is a group of bleeding disorders that are caused by a deficiency of blood clotting...

What Causes Hemophilia?

Hemophilia is a group of bleeding disorders that are caused by a deficiency of blood clotting...
Types of hemophilia and other bleeding disorders are defined by which clotting factor (or...

Types of Hemophilia

Types of hemophilia and other bleeding disorders are defined by which clotting factor (or...
When and how a bleeding disorder is diagnosed depends on what type of bleeding disorder the...

Hemophilia – The Path to Diagnosis

When and how a bleeding disorder is diagnosed depends on what type of bleeding disorder the...
To determine how you can reduce your medical expenses, MyHemophiliaTeam sat down with Susan Null...

How To Reduce Medical Bills: Top Financial Expert Shares 10 Tips

To determine how you can reduce your medical expenses, MyHemophiliaTeam sat down with Susan Null...
Because the physical impact of hemophilia can be all-consuming, you may be dealing with...

How Hemophilia Can Affect Your Mental Health

Because the physical impact of hemophilia can be all-consuming, you may be dealing with...
Hemophilia is a rare bleeding disorder usually caused by certain genes. Most often, hemophilia...

Hemophilia – An Overview

Hemophilia is a rare bleeding disorder usually caused by certain genes. Most often, hemophilia...
Without treatment, people with hemophilia and other bleeding disorders are at risk for excessive...

Hemophilia Treatments: Your Guide

Without treatment, people with hemophilia and other bleeding disorders are at risk for excessive...
Bleeding is the best-known symptom of hemophilia, but it is not the only symptom. Pain, mobility...

Signs and Symptoms of Hemophilia

Bleeding is the best-known symptom of hemophilia, but it is not the only symptom. Pain, mobility...
Those of us living with pre-existing, chronic conditions such as hemophilia have likely felt the...

Canceling Is Kindness: Keeping Safe From COVID-19 With Hemophilia

Those of us living with pre-existing, chronic conditions such as hemophilia have likely felt the...
Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...

Setting Intentions for 2020 With Hemophilia

Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...
MyHemophiliaTeam My hemophilia Team

Two Ways to Get Started with MyHemophiliaTeam

Become a Member

Connect with others who are living with hemophilia. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about hemophilia sent to your inbox.

Not now, thanks

Privacy policy
MyHemophiliaTeam My hemophilia Team

Thank you for signing up.

close