Impact of Pain on Quality of Life for People Living with Hemophilia

Posted on December 16, 2017

While people with hemophilia A are known to suffer from bleeding, numerous other symptoms can also be a burden, including pain. Members of MyHemophiliaTeam who have hemophilia A responded to an online survey to share how other symptoms impact their daily life. Members described pain, in particular, as having a significant impact on quality of life, including disrupting sleep, limiting work, causing social withdrawal, and leading to inactivity.

Source: What Endpoints Matter Most in Hemophilia? April, 2017 survey of MyHemophiliaTeam members conducted in partnership with Bioverativ. Question: In the past 3 months, in what ways, if any, has pain impacted your quality of life? Check all that apply. (Sample size = 26 adults and 28 caregivers).

What hemophilia symptom has had the biggest effect on your life? Share with other members in a comment below.

A MyHemophiliaTeam Member said:

Joint damage, and severe to moderate pain contstantly. With the war on opiates bleeders are in the non cancer category and treatment that is adequate is… read more

posted 6 months ago


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