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Impact of Pain on Quality of Life for People Living with Hemophilia

Posted on December 16, 2017

While people with hemophilia A are known to suffer from bleeding, numerous other symptoms can also be a burden, including pain. Members of MyHemophiliaTeam who have hemophilia A responded to an online survey to share how other symptoms impact their daily life. Members described pain, in particular, as having a significant impact on quality of life, including disrupting sleep, limiting work, causing social withdrawal, and leading to inactivity.

Source: What Endpoints Matter Most in Hemophilia? April, 2017 survey of MyHemophiliaTeam members conducted in partnership with Bioverativ. Question: In the past 3 months, in what ways, if any, has pain impacted your quality of life? Check all that apply. (Sample size = 26 adults and 28 caregivers).

What hemophilia symptom has had the biggest effect on your life? Share with other members in a comment below.

A MyHemophiliaTeam Member said:

I'm in the same. I've turned to CBD to help and other for worse pain. Only thing is it's not paid by insurance so I'm having to find ways to pay for it. The pain Dr. Treated me like I was a druggie… read more

posted over 2 years ago

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