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Tips for Coping With Infusions: Lifehacks from MyHemophiliaTeam Members

Tips for Coping With Infusions: Lifehacks from MyHemophiliaTeam Members

Infusions are an uncomfortable and time-consuming part of life with Hemophilia. Members of MyHemophiliaTeam often share lifehacks, or tips you'd never get from your doctor that can help you face the everyday challenges of hemophilia. Below,...
Posted 06/15/2017
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Finding a New Normal: Living With Hemophilia

Finding a New Normal: Living With Hemophilia

Receiving a diagnosis of hemophilia or a bleeding disorder can be upsetting because it labels us with a problem for which there is no clear cure. Diagnosis is like suddenly falling off a cliff. Abruptly, the life we had before diagnosis vanishes....
Posted 06/01/2017
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The Most Overlooked Hemophilia Symptoms #HEMOchat Twitter Chat

The Most Overlooked Hemophilia Symptoms #HEMOchat Twitter Chat

There is something powerful when you’re able to pull together the wisdom of the crowd. Above is an infographic to distill research done by MyHemophiliaTeam in 2016 around common symptoms experienced by the hemophilia community and what often gets...
Posted 12/08/2016
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The Most Overlooked Hemophilia Symptoms (Infographic)

The Most Overlooked Hemophilia Symptoms (Infographic)

An iceberg represents an unknown, hidden element below the surface. We always say that it’s impossible to understand what living with a bleeding disorder is like unless you live with a bleeding disorder. Using the wisdom of the crowd, we wanted to...
Posted 12/08/2016
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More Than Bleeds: 2 Overlooked Hemophilia Symptoms (Infographic)

More Than Bleeds: 2 Overlooked Hemophilia Symptoms (Infographic)

The hallmark symptom of hemophilia is bleeds: excess blood that often pools in joints such as the wrists, knees and elbows. We surveyed MyHemophiliaTeam members about their symptoms and found that many with hemophilia experience two additional...
Posted 12/04/2016
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Your Answers: The Worst Hemophilia Advice (Infographic)

Your Answers: The Worst Hemophilia Advice (Infographic)

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and you took the time to respond.What did we learn? From the unconcerned ("He will grow out of it") to the plain unhelpful ("Is it...
Posted 11/13/2016
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