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... Some members postpone needed treatments due to these fears. “So scared of surgeries with Von Willebrands!” wrote one member. “Setting up my appointment to get my wisdom teeth out,” said another. “Kinda scared since I'm a bleeder and I don’t know what to expect.” ...

... As children and adolescents grow and gain more independence, some fears may subside while new worries emerge.Caregivers of children with hemophilia need ongoing support, too. Since hemophilia is a rare condition, it’s not uncommon to feel misunderstood or isolated in your local community. ...