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Learn More About Rare Patient Voice
Since the passage of the Orphan Disease Act in 1983, significant progress has been made in treati...
Learn More About Rare Patient Voice
Since the passage of the Orphan Disease Act in 1983, significant progress has been made in treati...
What Alex Borstein's Hemophilia Diagnosis Does for the Rest of Us
When Alex Borstein, actress and voice of Lois Griffin on the hit TV show "Family Guy," revealed s...
What Alex Borstein's Hemophilia Diagnosis Does for the Rest of Us
When Alex Borstein, actress and voice of Lois Griffin on the hit TV show "Family Guy," revealed s...
5 Jobs for People With Hemophilia
Like everyone else, people with hemophilia have different career interests and strengths. However...
5 Jobs for People With Hemophilia
Like everyone else, people with hemophilia have different career interests and strengths. However...
You’ve Just Been Diagnosed With Hemophilia. Now What?
We all respond differently to information about our health. After learning you or a loved one has...
You’ve Just Been Diagnosed With Hemophilia. Now What?
We all respond differently to information about our health. After learning you or a loved one has...
Patience: Accepting That Control Requires Self-Care
"A waiting person is a patient person." - Henri J.M. Nouwen Argh! Have you ever felt impatient at...
Patience: Accepting That Control Requires Self-Care
"A waiting person is a patient person." - Henri J.M. Nouwen Argh! Have you ever felt impatient at...
Ready to Stop Judging Yourself?
"I was tired of hearing my harshest critic, the little voice in my head, so I became more kind to...
Ready to Stop Judging Yourself?
"I was tired of hearing my harshest critic, the little voice in my head, so I became more kind to...
How von Willebrand Disease Is Diagnosed: Tests and More
On the surface, many bleeding disorders look the same. Doctors need to order specific tests to di...
How von Willebrand Disease Is Diagnosed: Tests and More
On the surface, many bleeding disorders look the same. Doctors need to order specific tests to di...
5 Ways To Reduce the Cost of Hemophilia Treatment
Hemophilia treatment isn’t cheap. Out-of-pocket costs for clotting factor therapies alone can be ...
5 Ways To Reduce the Cost of Hemophilia Treatment
Hemophilia treatment isn’t cheap. Out-of-pocket costs for clotting factor therapies alone can be ...
9 Tips for Living Well With Hemophilia
Living with hemophilia, or caring for a child with the condition, can be challenging, even with t...
9 Tips for Living Well With Hemophilia
Living with hemophilia, or caring for a child with the condition, can be challenging, even with t...
Bleeding Disorder Glossary
AIDS (acquired immunodeficiency syndrome)—a disease caused by the human immunodeficiency virus (H...
Bleeding Disorder Glossary
AIDS (acquired immunodeficiency syndrome)—a disease caused by the human immunodeficiency virus (H...