Your Answers: The Worst Hemophilia Advice (Infographic)

Posted on November 13, 2016

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and you took the time to respond.

What did we learn? From the unconcerned ("He will grow out of it") to the plain unhelpful ("Is it contagious?"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • He will grow out of it
  • Is it contagious?
  • Just be more active
  • It could be worse
  • He's fine though, right?
  • Just don't worry

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about hemophilia do YOU wish people would stop telling you?

A MyHemophiliaTeam Member said:

So you'll bleed to death if you cut your finger?

...that was always my favourite to hear...and people wonder why I keep it to myself...

posted 17 days ago

hug

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