Connect with others who understand.

sign up log in
About MyHemophiliaTeam

Your Answers: The Worst Hemophilia Advice (Infographic)

Posted on November 13, 2016

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and you took the time to respond.

What did we learn? From the unconcerned ("He will grow out of it") to the plain unhelpful ("Is it contagious?"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • He will grow out of it
  • Is it contagious?
  • Just be more active
  • It could be worse
  • He's fine though, right?
  • Just don't worry

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about hemophilia do YOU wish people would stop telling you?

A MyHemophiliaTeam Member said:

I became a college professor. I was open with people about my bleeding disorder and tried to educate them. I also stayed away from my old dangerous sports and power tools that had blades. Biggest… read more

posted 11 months ago

hug

Recent articles

Hemophilia is a rare bleeding disorder usually caused by certain genes. Most often, hemophilia...

Hemophilia – An Overview

Hemophilia is a rare bleeding disorder usually caused by certain genes. Most often, hemophilia...
Without treatment, people with hemophilia and other bleeding disorders are at risk for excessive...

Hemophilia Treatments: Your Guide

Without treatment, people with hemophilia and other bleeding disorders are at risk for excessive...
Bleeding is the best-known symptom of hemophilia, but it is not the only symptom. Pain, mobility...

Signs and Symptoms of Hemophilia

Bleeding is the best-known symptom of hemophilia, but it is not the only symptom. Pain, mobility...
Those of us living with pre-existing, chronic conditions such as hemophilia have likely felt the...

Canceling Is Kindness: Keeping Safe From COVID-19 With Hemophilia

Those of us living with pre-existing, chronic conditions such as hemophilia have likely felt the...
Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...

Setting Intentions for 2020 With Hemophilia

Eat healthier. Exercise more. Learn a new skill. Pay off a credit card. Many of us have made...
This time of the year can be overwhelming with expectations around the holidays, and living with...

Practicing Gratitude With Hemophilia

This time of the year can be overwhelming with expectations around the holidays, and living with...
Living with or caring for someone with hemophilia may change your holidays, but you can still...

Enjoying the Holidays While Living With Hemophilia

Living with or caring for someone with hemophilia may change your holidays, but you can still...
We all respond differently to information about our health. After learning you or a loved one has...

You’ve Just Been Diagnosed With Hemophilia. Now What?

We all respond differently to information about our health. After learning you or a loved one has...
There is an old saying: “Good fences make good neighbors.” Having healthy boundaries in...

How Good Boundaries Make Life With Hemophilia Easier

There is an old saying: “Good fences make good neighbors.” Having healthy boundaries in...
Thousands of members of MyHemophiliaTeam connect with one another and read each other's stories...

Four Books About Hemophilia You Should Read

Thousands of members of MyHemophiliaTeam connect with one another and read each other's stories...
MyHemophiliaTeam My hemophilia Team

Two Ways to Get Started with MyHemophiliaTeam

Become a Member

Connect with others who are living with hemophilia. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about hemophilia sent to your inbox.

Not now, thanks

Privacy policy
MyHemophiliaTeam My hemophilia Team

Thank you for signing up.

close