Connect with others who understand.

Sign up Log in
Quick Links
Q&A Treatments A-Z Help Center Guidelines Crisis Accessibility
Resources
Emotional Well-Being Hemophilia Information Hemophilia Symptoms and Side Effects Hemophilia Treatments Living With Hemophilia All Resources
About MyHemophiliaTeam
What is This Site Terms of Use Privacy policy
Powered By
Living With Hemophilia/Living With Hemophilia
See answer
See answer

Your Answers: The Worst Hemophilia Advice (Infographic)

Posted on November 13, 2016

We asked and you answered! We posted this question: What bits of "advice" do you wish people would stop telling you? and you took the time to respond.

What did we learn? From the unconcerned ("He will grow out of it") to the plain unhelpful ("Is it contagious?"), advice is hurled at us from friends, family, coworkers, even strangers. While most suggestions are probably well-intentioned, hearing them over and over can make us feel that our condition is minimized and misunderstood.

Some of the most common answers we heard:

  • He will grow out of it
  • Is it contagious?
  • Just be more active
  • It could be worse
  • He's fine though, right?
  • Just don't worry

Everyone's situation is different and not all of these apply to each person. Tell us: What advice about hemophilia do YOU wish people would stop telling you?

A MyHemophiliaTeam Member

I became a college professor. I was open with people about my bleeding disorder and tried to educate them. I also stayed away from my old dangerous sports and power tools that had blades. Biggest… read more

All updates must be accompanied by text or a picture.

We'd love to hear from you! Please share your name and email to post and read comments.

You'll also get the latest articles directly to your inbox.

Subscriber Photo Subscriber Photo Subscriber Photo
15,081 members
Subscribe
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy • Terms of Use
All updates must be accompanied by text or a picture.

Subscribe now to ask your question, get answers, and stay up to date on the latest articles.

Get updates directly to your inbox.

Subscriber Photo Subscriber Photo Subscriber Photo
15,081 members
Subscribe
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service.
Privacy Policy • Terms of Use

Related

  • Is there a cure for hemophilia? See answer
  • What are foods and drinks to avoid with hemophilia? See answer
  • How does living with hemophilia affect mental health and stress? See answer
  • What do I need to do differently now that I have hemophilia? See answer
Can You Get a Tattoo With Hemophilia?
Considering getting a tattoo when you have hemophilia requires careful decision-making. Whether y...
Can You Get a Tattoo With Hemophilia?
Considering getting a tattoo when you have hemophilia requires careful decision-making. Whether y...
5 Ways To Reduce the Cost of Hemophilia Treatment
Hemophilia treatment isn’t cheap. Out-of-pocket costs for clotting factor therapies alone can be ...
5 Ways To Reduce the Cost of Hemophilia Treatment
Hemophilia treatment isn’t cheap. Out-of-pocket costs for clotting factor therapies alone can be ...
Getting Disability Benefits With Hemophilia: Do You Qualify?
Life with hemophilia is different for everyone. Those with milder forms of the blood-clotting dis...
Getting Disability Benefits With Hemophilia: Do You Qualify?
Life with hemophilia is different for everyone. Those with milder forms of the blood-clotting dis...

Thank you for subscribing!

Become a member to get even more